About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (5)

Tue, Dec 3 6:18am · Breakthrough seizures after 16 yrs in Epilepsy & Seizures

So sorry, and hate you have to be alone. It does seem like Dr.'s Are overloaded and don't really know or have answers to many of our seizures and concerns. Hang in there and know you are not alone in wanting answers and quick fixes.

Tue, Dec 3 6:07am · Atonic Seizures or Drop Down Seizures in Epilepsy & Seizures

Thank you for your information on atonic seizures it really helps hearing about others experiences. My daughter's returns to neurologist in a weeksuccessful and a half for regulating her VNS stimulator. We are going to try the Medical marajuana since the VNS has not been too successful. Next step he says is to do some cardiologist testing.

Sat, Nov 30 7:29am · Atonic Seizures or Drop Down Seizures in Epilepsy & Seizures

She is being seen by a neurologist. He says he has many patience with seizures, but very few with this type.

Sat, Nov 30 7:25am · Atonic Seizures or Drop Down Seizures in Epilepsy & Seizures

My daughter is Developmentally Delayed so she is unable to tells us of any Auras. She does lose awareness when she has one for about 3 to 5 seconds and than wants to know what just happened. Her medications are depacoat, keppra, and globasam. The VNS stimulator seemed to help a little for a short period. Right now she is in wheel chair and can only put a little weight on injured leg for transfers.

Tue, Nov 26 3:21pm · Atonic Seizures or Drop Down Seizures in Epilepsy & Seizures

  1. My special needs daughter, age 37 , started having these seizures a year and a half ago. Was wondering if anyone else have dealt with them and what their experience have been with them. My daughter is on 3 types of medicine and has had the VNS Stimulator put in last August. We still are experiencing multiple seizures a month, with 2 surgeries from falls.