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Sun, Aug 23 11:07am · Primary NET in intestinal lining w/ atrophic gastritis in Neuroendocrine Tumors (NETs)

Gastric carcinoid she were found in 2010 during a hysterectomy (surgery) when I was diagnosed with Stage 3b Uterine Cancer. I had been cancer free since 1987 when I was diagnosed with stage 2 Thyroid Cancer involving 3 lymph nodes. Since the 2010 surgery I have had 13 chemo treatments & 28 radiation treatments ( resulting in atrophic vaginitis). I was treated at UW Carbone Cancer Center, Vince Lombardi Cancer Center & Northwestern Cancer Center. I was released from UW Carbone Cancer Center in 2016. Returned for a “routine” EDG in June, 2017 & the GI Surgeon found a Primary NET in the intestinal lining. I researched specialists & with the help of an MD/ friend was referred to an NET Specialist at the Mayo Clinic in Phoenix. Dr. Sonbol. His follow up diagnosis is that it is a well differentiated NET. He set up a team including a GI Specialist who diagnosed the Atrophic Gastritis via another EDG. The Endocrinologist on the team found some residual Thyroid tissue & put me on a supplement. Calcium+magnesium + ?. I was A-symptomatic until June 2018. Then, abdominal pain & eventually diarrhea followed & chronic fatigue. I am on a two month visit in Wisconsin, USA. I had the most recent EDG done here & 2 polyps & 6 tissue sections removed. All carcinoid. He has prescribed Hypscyamine for the gastric attacks/ episodes to take as needed. I remain in the monitor & observe stage now repeating EDG’s at 6 month intervals & the NET Special annually. The next two will be performed at Mayo Hospital in Phoenix & the Clinic in Scottsdale. Stay well & safe.

Sat, Aug 22 8:51am · Primary NET in intestinal lining w/ atrophic gastritis in Neuroendocrine Tumors (NETs)

Does anyone share this combination? Also, the Serotonin secreted by the tumor seems to be attracted to Emines (sp) in certain foods that result in severe gastric attacks. While my GI MD has prescribed a med that works; it is difficult to know when to take it. Is it an actual painful attack starting or simply a painful gastric moment that will pass?

Nov 17, 2019 · Low fiber foods to eat before colonoscopy? in Neuroendocrine Tumors (NETs)

The instructions only tell me what not to eat. It would be helpful if they included suggestions on what food items are good to eat in the low fiber, non- dairy sphere.