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Nov 29, 2019 · Any positive stories about Benzo tapering? in Addiction & Recovery

@johnhans Thanks for your information. I'm doing the tapering myself to half my dose. I just wish the doctors would understand that some people may still need benzos. Some doctors are tapering patients off incorrectly. Sometimes, I wonder if they want patients to completely get off, but what is the plan after? None of my doctors discussed that part. Are they thinking of prescribing another medication? That is mainly what I am worried about. I am afraid I will get over-anxious again and that feels terrible. The doctors I am working with are just saying "get off" (but then what)?

Nov 27, 2019 · Any positive stories about Benzo tapering? in Addiction & Recovery

Hi @lisalucier I have a question. I have been on Clonazepam for 10 years 3 mg daily. Can someone still stay on Clonazepam, if they feel they really need it? I recently tapered (on my own) to 1.5 mg a day, which I feel will be enough for me (I was told to totally taper off). I feel that if I do not take Clonazepam at all, my symptoms will return stronger – PTSD, depression, anxiety, and anxiety attacks. The anxiety is very strong on my mom's side. My grandma had to lay down on the back seat when my grandpa drove to Florida. My mom ended up in the hospital due to anxiety, 2 sisters did too, and my daughter. My aunt had it, my cousins, and more relatives. My mom was anxious on her honeymoon and said she couldn't see herself in the mirror. When I was a teen, I had an attack one morning and had to put a bag over my mouth to breathe. My mom called the doctor, and he told her to give me one of her valiums. I truly believe it is a gene in our family and that I need "some" Clonazepam. I am thinking why did they make Clonazepam? I know it is for short-term mostly and that now they are finding negative things about it. I have been on it long-term and I really feel it helps. It is not a craving, but actually helps me live my life better. I got panic attacks a lot. I still get some panic attacks. I was shopping and the whole store started spinning. I had to get down on the floor and put my head down until it went away. I don't think anyone saw me, because I was between the women's clothes. Many times, I would be shopping and I knew I had to leave the store. My daughter has bipolar I. She has to take medications to stay stable. She also takes Clonazepam. Her bipolar came from her dad's side (which must be a gene). I never knew how many of his relatives had bipolar disease. He is my ex-husband. Everyone kept it a secret. I believe that my daughter also got some of my anxiety problems that go with her bipolar disease. In the past, I had been tried on other Benzos, but they were either too strong or didn't do anything. I guess I just feel that we know our own body the best and what actually works for us. I feel that tapering totally off Benzos is kind of mean for doctors to do, especially when they don't feel what you feel and plus most don't know how to taper, making others worse.

Nov 27, 2019 · Any positive stories about Benzo tapering? in Addiction & Recovery

Sorry, I forgot to reply to @lisalucier – Sorry I was to reply to you, since you originally asked the question. Happy Thanksgivnig! See reply to @engelee

Nov 27, 2019 · Any positive stories about Benzo tapering? in Addiction & Recovery

Hi @engelee, sadly this is true. It started when I had to find new Psychiatrist (I had been looking before for a very long time). I was supposed to see a male Psychiatrist and a few weeks before my appointment, he retired. There was no one available in my network to see; I am at Aurora Health Care now. In our town, they only have NP/Psychiatrists. They are very booked up, because one of their NP/Psychiatrists quit, and the others had to take her appointments. This is a long boring story. Anyways, the NP/Psychiatric that I am going to see (not until May), had her nurse call me and said that the NP/Psychiatric would not see me unless I tapered off my Clonazepam. When she told me this, I said I had to think about that. I thought about it and realized that she was the only NP/psychiatric I could see. I called back and the nurse told me my tapering schedule for 3 weeks (which never worked and I almost had a nervous breakdown). I have been on Clonazepam for about 10 years. I did not realize the tapering would affect me so bad. Then, I called the NP/Psychiatrist's office and my Internist's office. No one got back to me the entire week. I called back to the NP/Psychiatry and and said my call was urgent. They said the NP/Psychiatry was too busy. They were going to put me through to another nurse. I said that I wanted to talk to the highest person at the clinic. They put me through to the General Manager. Her voice mail came on and I left a message (she never called back). I called the next day and asked again for the General Manager, they didn't tell me this, but they put me through to the Supervisor instead. I explained to her what happened and told her about the Ashton Manual ( believe I wrote about this part before). Before this, when I was feeling so terrible from the tapering, I told my husband that this was enough. I took a full pill and felt so much better. I wrote before how this Supervisor was very defensive and argued with me about the Ashton Manual. She said that they go by "National Guidelines". I told her that I would look that up. In the beginning, When I had heard that this NP/Psychiatry won't see any patients until they are tapered off benzos, I wondered about that too, and didn't think that could be correct. I hadn't seen or spoke to her personally and she knew nothing about me (except that I was taking Clonazepam). I looked on the internet to see if there was something about this; I couldn't find anything. Due to the inappropriate treatment I received from the Supervisor and thinking about the tapering, since joining this group, I am not going to see her, because I believe no one knows about tapering and they don't care. I tried to see a Psychiatrist at a hospital in our town, but Aurora said they don't refer there. The hospital said they don't refer to Aurora. I think this is a very stupid rule. Then, I checked again on the internet and found out that if you are on Medicare and have a supplement that is a PPO you can go anywhere. There are 2 Psychiatrists at the hospital that are taking new patients. I am going to call after Thanksgiving and cancel my appointment with the NP/Psychiatry, I am also going to cancel my new Internist (due to lack of communication or caring). My husband sees an Internist at Aurora, who is more concerned and keeps on top of things for my husband. He is not taking new patients, but said he would take me. So, after Thanksgiving things will change. I hope to get back on track. I am also going to ask if the Psychiatrist and the new Internist know about tapering. I will bring the Ashton manual with me and give each of them a copy. DOES ANYONE KNOW IF THE ASHTON MANUAL COMES IN A BOOK FORMAT? I also found this website that sounded the closest to the generic "National Guidelines" – PubMed.gov. Is is called the US National Library of Medicine/National Institute of Health. Thanks for the question. I am not sure if anyone else had to go through this time-wasting ordeal. I am from Wisconsin, so maybe they have different rules. If they don't, I will have to report this.

Nov 26, 2019 · Any positive stories about Benzo tapering? in Addiction & Recovery

Hi @helenfrances Even if you don't sue a Physician, you can report them. There are a few places you can do this. So far, I reported my ex-Physician to Medicare. The next one is your State Health Organization. If you look on the internet you can find others.

Nov 26, 2019 · Any positive stories about Benzo tapering? in Addiction & Recovery

@helenfrances Hi, I have a feeling that the "Supervisor" I spoke with about the office just said "National Guidelines" I have been looking for a while trying to find something like the name. I don't think she even knows and wanted to sound smart. I should have asked her more about it, or gotten an email. I did look up FDA, but they seem more interested in opioids and opioids combined with other drugs. There are sights for tapering Benzos, which are very good, but I don't think they are Government or National. Something will come up. There is the Ashton Manual.

Nov 25, 2019 · Any positive stories about Benzo tapering? in Addiction & Recovery

Hi again @helenfrances. I looked at the site again and maybe that isn't the same one I saw before. It sounds like this one is more about stopping benzodiazepines. Maybe you can see what you think.

Nov 25, 2019 · Any positive stories about Benzo tapering? in Addiction & Recovery

@helenfrances I found this site https://www.benzoinfo.com. It is a site called Benzodiazepine Information Collation. There is a lot of information. Not sure if anyone else already posted this site. It looks interesting. I just skimmed over it, but I'm going to check it out.