About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (7)

Nov 9, 2019 · Liver transplant support group in Transplants

Thank you guys so much. We are just trying to get some answers here and it’s just one bad situation after the other. I’m hoping they will put him on dialysis and hoping that will help, even if it’s just a little. Seeing him struggle is so heartbreaking. Thank you again to everyone helping, it means a lot and is helping more than you guys know!

Nov 8, 2019 · Liver transplant support group in Transplants

This is helping so much. Did anyone have kidney issues as well? My dad is also battling kidney failure and was just hospitalized again this afternoon. He doesn’t know the year, the president, only who my mom and I are. Which I am thankful for. This is so incredible hard for our family and we are not giving up.

Nov 8, 2019 · Liver transplant support group in Transplants

Thank you! I am getting used to the chat format, and answered all the recent comments first before I saw this one. Now I know how it works!
My Dad and I are very close, and I want to help my mom and myself as much as possible for this long road we are on, and about to be on.
We are currently waiting on the insurance to approve of the transplant, and then we will be proceeding to the testing. The Phoenix, AZ location is the Mayo we are receiving care at. They said his score will be high enough that he will be competitive enough for a deceased donor, which they would ultimately prefer rather than a living donor.
Thank you so much for your support.

Nov 8, 2019 · Liver transplant support group in Transplants

I am so sorry to hear that. The wait is so long, and it makes life a serious struggle. Do you mind me asking, and I am super sorry if I offend anyone by asking, but what is the cause of your liver to be replaced?

Nov 8, 2019 · Liver transplant support group in Transplants

Thank you for your reply! And thank you again, my parents are awesome people and my Dad and I are very close. We run a custom home business together which I have taken on my own, and sometimes I feel like all I want to do is call him and ask him a question, but he literally is so brain fogged, that he can't even get a simple sentence out some days. Other days he is pretty alert and he can talk and have a conversation, but other days he is weak and frail. He is on both Lactalose and Rixfixin (SP) and I am not sure if it is going to get better or worse. He pretty much just sleeps all the time and his appetite is non existent. Anything to help the HE? Does it get better over time with the medicine? Also, with the tiredness and loss of appetite?

Nov 8, 2019 · Liver transplant support group in Transplants

What is a HE Episode?

Nov 7, 2019 · Liver transplant support group in Transplants

Hello, my dad is beginning the transplant process for a new liver at Mayo in Phoenix. I joined this group in hopes that I could share some of the daily struggles and maybe get some help dealing with the day to day life for my mom and my dad. Were battling mind cloudy-ness currently and it’s a struggle. Thanks everyone!