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Posts (31)

Fri, Mar 6 12:51pm · Giant cell arteritis in Polymyalgia Rheumatica (PMR)

My new rheumatologist at HSS in NY prescribed Actemra. Went for training lesson today and gave myself my first shot.

Tue, Feb 25 3:33pm · Autoimmune mystery in Autoimmune Diseases

Update, please!

Fri, Feb 21 6:14am · Giant cell arteritis in Polymyalgia Rheumatica (PMR)

I am on Prednisone since 8/19. .. down to 15 mg. from 50. Just yesterday I saw a doctor at Hospital for Special Surgery in NYC. She has prescribed Actemra and I've been approved. I will now change Rheumatologists.

Thu, Feb 20 7:47pm · Giant cell arteritis in Polymyalgia Rheumatica (PMR)

Input on tapering Prednisone.

Thu, Feb 20 11:02am · Autoimmune mystery in Autoimmune Diseases

My second Shingrix vaccination triggered Giant Cell Ateritis, a rare autoimmune disease. It is an inflammation of the temporal artery and is considered serious unless it is treated with prednisone. This is my story and it is probably quite different from your own. Initially, doctor thought it was Polymyalgia Rheumatica,also autoimmune. They are both treated by a Rheumatologist. If you research both, maybe the symptoms could rule these out diseases. Good luck.

Sat, Jan 11 7:26am · Weak, Sick, & Scared in Autoimmune Diseases

Wonderful advice from phoenix0509! Stress can precipitate illness. As a last resort, an Emergency Room visit might be an option. You are in my thoughts and prayers.

Thu, Jan 2 4:08pm · Aortic Aneurysms – Introduce yourself & meet others in Aortic Aneurysms

I have been diagnosed with Giant Cell Arteritis. Is there a relationship to Aortic Aneurysms?

Dec 27, 2019 · Question on ANA and dsDNA in Autoimmune Diseases

Thank you for getting back to me! I will look for it now. Happy New Year.