@parrotqueen thank you and I'm glad you're feeling better. I will definitely reach out to you if they ever figure out my issues.
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@lisalucier I was told it would be a few weeks before I got my silvia results. In his notes he's just doing this test to rule out Cushing's disease because he doesn't believe that's what I have. From what I understand they are uncertain about the cause of my issues.
Ok just to give everyone and update. I recieved my lab results from my initial visit with my Encronologist and Neurologist. Ironically, my prolactin levels were normal (24) and all the other lab results were also normal however I still have breast discharge. My Encronologist said it may be idiopathic discharge. My prolactin levels have been checked monthly since August and each month they have been mildly elevated until this month. My Encronologist also stated I may have a tiny tumor but the MRI was unconvincing and my level would be in the 200's if my elevated prolactin levels were related to a pituitary adenoma that produced excessive prolactin. My Encronologist is doing a siliva test for possible Cushing's disease but highly doubts if that is an issue. I completed siliva test last night, so I'll wait to see what happens. I've been told not worry or I'm not sure what you have but if you do have a pituitary tumor, it's tiny and nothing to worry about. I just believe every situation is unique and shouldn't be dismissed because they don't fix the typical textbook explanations. Just my thoughts from a confused patient.
Thank you so much for the words of encouragement. I'm glad your husband was able to find resolution and I'm sure he's grateful that you were there to help him through it all. It gets tiresome but I won't give up. I just did my siliva test last night and will start looking for another team of doctors to get a second opinion.
I had a MRI done a few months ago due a moderately elevated prolactin levels (42). The MRI showed a possible 4mm microadenoma. I recently saw a Neurosurgeon and Encronologist and was told by the Neurosurgeon that she doesn't think I have a pituitary tumor. She basically said if there is a tumor there, it's small and nothing to worry about. She went on to show me some old pictures that she uses for illustration of a large and a small tumor. Then she showed me my images on a screen and asked me if I saw anything similar to what she had shown me on the black and white photos and I didn't. She pointed out the area where the possible pituitary adenoma was and said most people have small lesions of some sort like that. My Encronologist is running test to check various hormone levels. He's wants to rule out somethings but is concerned about my BP and weight. I'm tired all the time and have anemia and migraines. He asked about my sleep habits and now I have to do a sleep study. The Encronologist said there are a lot of pieces to this puzzle and unfortunately I wouldn't get the answers until various test were completed. I also have to so a siliva test.
I'm so lost. I'm scheduled to repeat an MRI next year. Things are just all over the map. And it doesn't help when all your family hears is you don't have a tumor and everything else goes out the window. Meanwhile, I'm just sitting looking lost and confused. Has anyone else had to deal with anything like this. Maybe I should be happy the Neurosurgeon didn't see anything but it doesn't feel right to me. I am thrilled that no surgery is needed but not convinced that nothing is there. I'm just not convinced but I'm also not a Neurosurgeon lol. Any advice or input?