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Posts (12)

Fri, Jan 17 11:50am · Is anyone here talking Revlimid for chemo? If so please share with me in Blood Cancers & Disorders

Husband does. At first a little diarrhea. Goes away. 3 wks on, 1 week off. MDA patient, lical doc concurs. Coming up on 2nd yr, works great.

Sun, Jan 5 5:36am · Anemia in Blood Cancers & Disorders

Get to a research connected facility.

Sun, Jan 5 5:33am · MGUS in Blood Cancers & Disorders

You're handling it just fine. Get to Mayo or a large Cancer center now. They'll watch it monthly. Do your research. We went to MDAnderson in Houston.

Dec 23, 2019 · Multiple Myeloma in Blood Cancers & Disorders

I suggest a different doctor. Get to the MAYO Clinic, or MDAnderson Houston. There's not that many centers that can do a stem cell transplant and they are usually connected to a university medical center. My husband had a stem cell transplant to gain maybe 10 years of life. The next step is a T Cell procedure that is just this year approved by FDA. Don't mess around with MM. The difference between our original cancer doctor and MDAnderson is like night and day. Social services helped us with discounted apt. rates, cash and emotional support. We were there 2 months. He's 2 years out and so far so good. Blood draws monthly, bone shot in stomach monthly but he'll do that much. Prayers.

Dec 23, 2019 · Scar Tissue in Joint Replacements

I found this link interesting https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4246397/
I had TKR August 2019, immediately got an upper respiratory infection from hospital (common) and wasn't able to fight the scar tissue build up like I should. I had the break up of scar tissue under anesthesia 2 months later and it's much better. Dealing with bands now but that will be forever. I have occasional spark of electrical shock from a scar tissue breaking but very rarely. I guess my body has decided it's ok now and doesn't have to 'help' by making scar tissue. The article is intended for scholarly reading, so the first couple of paragraphs is enough to see that stats show this procedure (under only 10-15 minutes) versus the total arthoscopy like procedure works just as well. When they bring out knives etc., I'm not doing it. I can drive now and that's what I needed. I want my body to disintegrate all at the same time: no pacemakers for me. PT is FOREVER; whether at home or with help. They neglected to adequately inform me of the pain, etc. involved probably so they could keep me from backing out. So medicare and my insurance company put their kid through college. At least I can drive which I couldn't before. Hang in.

Dec 8, 2019 · Scar tissue after knee replacement in Joint Replacements

Mine was in August. Was told by PT and Doc that scar tissue is your body's way of protecting a 'hurt.' It may take 1 to 2 years to convince your body that you don't need 'protecting' as much. Break it up EVERY DAY. Move it constantly; little even helps (like 1 inch swinging it back and forth). My scar tissue has slowed down and now I deal with the muscle that runs from your hip over your quad, ACROSS THE KNEE CAP, tightening up and pushing down on the knee cap. That really hurts; we stretch it out at PT more than bending. I stretch it out across the bed, the couch, as I walk, etc. See anatomy pics to get a clearer pic of what is happening. Swelling in the quad hurts the knee cap. This pain is due to me actually beginning to live my life; sometimes I overdo it. Even walking too much without a cane an trigger huge pain in kneecap area. So now NAPROXEN helps (tylenol not quite strong enough) but don't need opioids as it isn't nerve pains, it's pressure on kneecap. So keep going to PT and stretch those quads every few hours just like you did ice in the beginning. It may take 1 to 2 YEARS. Hang in. Learning as I go.

Nov 27, 2019 · Scar tissue after knee replacement in Joint Replacements

I stretch that band several times a day oike i used to do with iceing. Past
scar tissue breaking, but that band swells and oushes against kneecap. The
pain is in the swelling pushing the knee cap. That's what my doc and PT
person says.

Oct 29, 2019 · Scar tissue after knee replacement in Joint Replacements

Yesterday I made it to 95 degrees! I'm so happy! Keep moving.