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Mon, Feb 17 12:16pm · Metastatic Breast Cancer (MBC): Help for Lymphedema and Cellulitis in Breast Cancer

I had a lumpectomy and axilla node dissection (all lymph nodes under left arm) removed. A few months after I finished 40 radiation treatments I developed lymphedema in my left breast that was VERY painful. My oncologist originally thought I had developed an infection so he sent me to an infectious disease doctor. One look and he said you have lymphedema ! He referred me to a lymphedema clinic for manual massage that I did several times a week for approximately 6 weeks. The clinic was 35 miles away and a burden to go to but I did it. They recomended I get a lymphapress which I did to use at home. My insurance covered most of it. I uses as needed but it really helps to keep the swelling down in the arm and my chest area. I would look in to it. Has been very helpful to me. I am 6 1/2 years out now and have no issues. Use the pump only as need. The sleeve did not do much for me. Hope this is helpful.

Nov 21, 2019 · 13 cancerous lymph nodes not detected on imaging in Breast Cancer

I have heard from a friend that went to MD Andersen there is a "nuclear" PET scan that is suppose to be better. They have to mix the material and use it within 2 hours. Not sure if Mayo offers this or not. I have never had that type of PET. I had a full axilla node dissection with 50 lymph nodes. Only sentinel node was positive. I understand the normal number of nodes is 25-30. I never had an MRI for breast only ultrasound.

Nov 19, 2019 · Concerned about the side effects of anastrozole in Breast Cancer

I have just returned from my 6 year post op appointment. I had a clear mammogram ! I initially was going to talk about coming off the Tamoxifen as I have now been on it 6 years. My worry was it would affect my bone density. At my appointment I learned that contrary to my belief, Tamoxifen can help prevent bone loss. The standard of care has been 5 years but there seems to be evidence now that 10 years of therapy is better. For that reason I have decided to remain on the Tamoxifen. I am fortunate that I really have no symptoms or side effects except possibly some hair thinning which may or may not be related to the drug. I will be 68 in December and there have been family members that had thinning hair as they grew older. My daughter is an NP and says "stay on the Tamoxifen" and get a wig if you have to ! Lol I think she wants me around a few more years. I will be having a bone density in January and will be anxious to see the results. I had mild osteopenia in my spine only before so hoping I have not had any increases of bone loss.

Oct 25, 2019 · Conflicted on taking medication in Breast Cancer

I had Stage 2 HER2 Positive breast cancer in 2013. Total axilla node dissection as sentinel node was positive even though my tumor was only 1cm. I had a lumpectomy and was placed on Tamoxifen after surgery. I am now six years out and still on Tamoxifen with no noticeable side effects. My plan was to stay on the Tamoxifen for 10 years. I am now 68 years old and about to head toMayo in Rochester for my post 6 year appt. Every year we discuss coming off the Tamoxifen and so far I have decided to stay on it. I may be lucky not to have any side effects. So far my bone scans have shown mild osteopenia.