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Oct 20, 2019 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

After reading that so many JAK2 people experience being weak or tired, and have balance issues, now I wonder if I can attribute my similar symptoms to the disorder. I tell people that my balance issue can be described as having been on a cheap drunk without having the pleasure. And I now tire easily. So now I’ll discuss this with my hematologist next week.

Oct 20, 2019 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

My JAK2 Mutation was discovered 11 years ago, quite by accident. I never had any symptoms. (My hematologist told me that for many, the only symptom is death, by a blood split in the brain, heart, or lung!). My original platelet count was close to a million! I’ve been taking Hydrea daily ever since, with no side effects from the drug. However, over the last couple years, my count has fluctuated between 450 to 800. My dosage is adjusted and rechecked again in 4-6 weeks. It’s possible the Hydrea might be losing its effectiveness. I worry that another drug cost or copay might be astronomical! If only a cure could be found. I’m 76 now, and other than arthritis, am in very good health.