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Health Interests
Autoimmune diseases, Blood disorders, Chronic pain, Digestive disorders, Heart and blood vessel disorders, Kidney and urinary tract disorders, Neurology (brain and nervous system)

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Posts (229)

Mon, May 11 12:18pm · B-6 vitamin danger! in Neuropathy

I eat a healthy diet that is high in foods that contain vitamin B6 and also some of the other B vitamins. I don’t need to take anything else.

Fri, May 8 1:26pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Keep in touch. We may all learn a lot through your involvement at the Mayo facility in Florida.

Tue, May 5 1:10pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

I take a pill called Isosorbide dinitrate every day for my heart. Penetrex is great when I have burning pain on my legs and hips.

Tue, May 5 11:43am · Anyone here dealing with peripheral neuropathy? in Neuropathy

I have been using Penetrex for years. If I can’t sleep because of the burning pain, I rub Penetrex on my legs and hips and wait for about 10 minutes. It reduces the pain level enough so I can get to sleep.

Mon, May 4 11:39pm · Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD) in Kidney & Bladder

I have always had blood in my urine. But it’s because I’m a hemophiliac and I seem to seep a little blood from a lot of my body parts all the time.

Sun, May 3 11:33am · Lyrica - Looking for Patient Experiences in Neuropathy

Lyrica did not help with my neuropathic pain and my hair fell out including my eyelashes and eyebrows. Because of my spinal cord injury, my autonomic nervous system does not function well. It affects everything from my esophagus and stomach to all my organs including my intestines and my pancreas, liver, kidneys, adrenal glands, bladder, bowels, etc. My immune system is compromised and nothing works like it used to. The burning pain wakes me up at night and I have not had a full night of sleep in eight years. I try to remain as positive as possible and enjoy the simple pleasures in life.

Sun, May 3 11:22am · Lyrica - Looking for Patient Experiences in Neuropathy

According to the Christopher Reave Foundation nurse, neuropathic pain changes over time. A drug that worked for us a few years ago, may no work anymore. Sometimes we need a stronger dose or maybe another drug will help with the pain. I have increased my dosage for gabapentin and it still works for me, but I may have to try something else soon.

Thu, Apr 30 1:50pm · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

I got my book on Lifespan today. When I read page 304, I realized that I do most of what he does except taking resveratrol and metformin. I have to check them out. I have been taking most of the other things though. I can’t go for a walk, so I can only do a few exercises at home. I have kept my weight down to 120 pounds and am fairly strong. I want to live a bit longer and be healthy.