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Posts (11)

Oct 18, 2019 · Cutaneous T Cell Lymphoma in Blood Cancers & Disorders

Do you have cold urticaria ??

Oct 18, 2019 · Grover's Disease in Skin Health

My dermatologist seeing three- all suggestion a major hospital biopsy says gd however looks like skin lymphoma.. going for intense blood work i have many allergies hence cannot take certain meds and drinks – cilantro-
I have pain— not so much itch— spreading alll over even private parts ugh!

Oct 11, 2019 · Narrow-band UV-B phototherapy in Skin Health

My appt is next week for phototherapy
With Grover’s there is no down side . What worse treatment of something rare and unknown or tear something familiar.. ?
No choice – however something is better than nothing b try coconut oil
Keep me posted

Oct 5, 2019 · Grover's Disease in Skin Health

So thankful

Oct 5, 2019 · Grover's Disease in Skin Health

Hoping for success

Oct 5, 2019 · Grover's Disease in Skin Health

Good morning
I have allergies to most everything my protein comes from legumes. It’s rice . I don’t eat beans I have tons of stomachache issues nevertheless my blood work is fine.. Well for me.. I don't believe there is a measure of eating for everyone .. we have different bodies and don’t require same percentage of foods ie protein minerals etc.. this disease has scared me knowing it’s nver leaving and not much known…
Elated to find this group comfort and blessed.

Oct 4, 2019 · Grover's Disease in Skin Health

Thank you for sharing I jus got diagnosed.. I do t itch but these spots are everywhere!! Photo therapy in two weeks let’s see
I’m also worried about foods? What to eat what not.. I have many allergies and afraid of cilantro.. any suggestions? I’m also vegan
Thanks for any help