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Thu, Nov 28 11:25pm · Severe cold pain in legs in Bones, Joints & Muscles

Not having answers is SO frustrating! I believe many members of this forum have had similar experiences. I know I have. Partly – it's because you have no idea how to treat the symptoms – and partly just because we want to know what we are dealing with. Can it be cured? Will it get worse? I know one of the first questions I asked was whether my mobility would be impacted over the long term. I was told my mobility would not be impacted – but honestly, I am not sure I believe that…

Fingers crossed that you get some answers in February!

Wed, Nov 27 4:04pm · I am 81 years of age (male) and in great health.....Stiffness in Bones, Joints & Muscles

I will definitely try to remember! I have arthritis in my hands (the worst is my thumbs) so I don't use them like I did when pain was a consequence. This, however, may be the ticket 🙂

Wed, Nov 27 3:57pm · Severe cold pain in legs in Bones, Joints & Muscles

Yikes! Sorry to hear this 🙁 Had you previously spoken to medical professionals about your symptoms?

Wed, Nov 27 1:23pm · I am 81 years of age (male) and in great health.....Stiffness in Bones, Joints & Muscles

Awesome exercises! I'm going to add this to my YouTube list of Exercises 🙂

Tue, Nov 26 12:32pm · Working with Neuropathy? in Neuropathy

Thank you Lisa 🙂 I will check out the info on starting a new topic. I just know that for years (decades), I knew something was wrong, but couldn't quite put my finger on what it was. And it does make for a pretty lonely life because you are limited in where you can go…

FYI:

https://www.ncbi.nlm.nih.gov/m/pubmed/20431873/?i=2&from=/27450709/related

* Dr. Iaria, the author of this article is the Researcher at the University of Calgary where I went through my testing. I have not actually met him, but have interacted with him via e-mail.

https://www.ncbi.nlm.nih.gov/m/pubmed/27923326/?i=3&from=/27450709/related

* This is the published study my sister and I were included in. I have also exchanged e-mails with the author (Stacey Barclay)

Mon, Nov 25 3:57pm · Working with Neuropathy? in Neuropathy

Sounds like you've got a LOT going on in your life. With so many challenges, I am really grateful that you are here for us 🙂

BTW – It is very common for people with DTD to panic when they become disoriented – ESPECIALLY when driving. I've described it by saying 'How would you feel if someone picked you up and dropped you into a completely foreign environment?' Truth is – one moment you are comfortable – know where you are – and the next minute nothing looks familiar. I thought I was losing my mind!

My husband has dyslexia. When I finally had the courage to tell his about my disorientation issues (undiagnosed at that point), he immediately said that it sounded like a form of geographical or environmental dyslexia. Thank God – he is extremely patient with me.

Mon, Nov 25 12:55am · Working with Neuropathy? in Neuropathy

So young!!! I hope you are able to work for as long as you want to! You are very wise to be exploring your options and establishing a Plan B.

Mon, Nov 25 12:49am · Working with Neuropathy? in Neuropathy

I will not be seeing a specialist again – at least, not in the foreseeable future. A Neurologist did the testing and provided a diagnosis, but he sent me back to my GP for monitoring and pain management. He did say I could come back if I had further issues, but I suspect by the time that happens I will need another referral. (In Canada, we cannot see specialists without a referral from a GP.)