My 5 yo son has this. It was diagnosed when he was 4 because he was having headaches. They were getting very severe and relieved with laying down. When the headaches became daily and a nurologist refused to give us medication for them, we scheduled surgery. That was 7 weeks ago. He did really well, even after getting the chemical menegitis. he has only had 5 headaches since we got home from the hospital and they were shorter and less severe than before surgery. We were told it can take 6 months to fully heal from surgery and see how things would heal.