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Mon, Apr 20 8:01pm · COVID-19 and the NETs Patient in Neuroendocrine Tumors (NETs)

Thanks for sharing this video.

Tue, Mar 31 9:17am · Are you getting cancer treatments during COVID-19? in COVID-19

If they are offering it, you should accept the testing since you are immune compromised, and they are looking out for your best interest!

Thu, Mar 26 9:01pm · Are you getting cancer treatments during COVID-19? in COVID-19

Colleen, I will have my first tele-visit next Monday with a non Mayo provider, so I will have to let you know how that goes, especially since I have some coming up with Mayo. You asked about our concerns. I think that the visits may be shorter since the provider patient virtual visit will not take into count body language. Rather the provide will rely on a question for example “do you understand”? We as patients, may not be as truthful and admitting confusion, ergo it could make one uncomfortable. I plan to have a list of question handy as I do with most visits. My final thought is if I am coming into Mayo for labs and procedures and I was scheduled that same day to see the dr, they are still asking for Tele-Med visit. Since I am local I can make it home in time, but it doesn’t make that much sense, unless we are still under the Pandemic, as my appointment is in mid-May. Thanks

Thu, Mar 26 6:30pm · Are you getting cancer treatments during COVID-19? in COVID-19

I cancelled all my iron infusion and labs due to COVID -19 and the oncologist arranged to have my B-12 shots sent to the pharmacy for me to take these at Home . Mayo is now scheduling telemedicine appointments, but we still have to go in for labs. I am not going out since I have almost all the co-morbidities listed for high risk. I talk and text family and friends to pass the time and keep Praying that God will protect all our healthcare staff and those providing essential services for the rest of us! ✝️🙏

Sep 9, 2019 · What topics do you want for the Neuroendocrine Support Group? in Neuroendocrine Tumors (NETs)

Hi Teresa

Here is an example of what my MRI stated in Feb 2019 :.

There are at least three tiny subcentimeter transient hypervascular hepatic lesions with associated diffusion abnormality: at the junction of hepatic segments V and IVb (series 19/image 44 and series 11/image 104), at the level of the left portal vein at
the junction of hepatic segments IVa, IVb, V and VIII (series 19/image 39 and series 11/image 103) and in hepatic segment IVa (series 19/image 34 and series 11/image 101). Tiny metastases are not excluded.

When I go to locate the image 19 stated above, I can’t seem to locate the right frame. So basically, just showing us some navigation techniques will help us to be able to better understand what the radiologist is referring to.

As always, post doctor appointments, there are tons of questions you “wished” you would had asked!!

I thought this might be a good topic for the monthly meeting as well.

Thank you for listening!

Sep 8, 2019 · What topics do you want for the Neuroendocrine Support Group? in Neuroendocrine Tumors (NETs)

I would be helpful if someone could provide some basic navigation skills on how to understand our CT /MRI scans. The report shows a specific frame of reference, but accessing the scans in question is confusing . Just an idea!