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Oct 3, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

@rwinney Thank you very much for this information Rachel. Are lidocaine infusions covered by Medicare? It’s good to know that your Dr endorses taking acetyl L Carnitine as I have seen conflicting opinions about its use. I actually bought a bottle but haven’t started taking it yet. There are some days when I feel very down but, for some reason, today I feel hopeful that there is a way forward to controlling the discomfort. I think one of the reasons for my hopeful attitude today is the support and sharing I see among members of this group, so thank you all.

Oct 2, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Good morning everyone. I want to share my recent experience with a pain relief device called Quell. I first saw it in my local pharmacy but because it is expensive wanted to do some research first. After doing some reading and exploring their website (quellrelief.com) I decided to take the plunge. I have been trying to find pain relief without having to take any prescription drugs and since Quell offers a 60 day money back guarantee thought it was worth a try. It does say on the website that you should wear it for at least 30 days since it can take some time for the pain relief to kick in. At day 12 I noticed that my pain had decreased substantially and at times it has virtually disappeared. When I do feel the familiar burning sensation it is at a manageable level and doesn’t last a long time. A couple of caveats: this is only day four of relief and being able to sleep but I am encouraged enough to mention this device should anyone want to look into it. I can continue to post updates on my experience to see if the effects continue (fingers crossed!)
Also, at the same time I started using the device I began taking PEA and using a full spectrum CBD capsule so who knows what the effects of those may have been. I don’t want to sound like a salesperson for a particular product but wanted to mention it as something that people may want to investigate. Has anyone else tried a Quell device?

Sep 28, 2019 · Scientific research and scholarly papers on Small Fiber Neuropathy in Neuropathy

@rwinney Rachel, I see you are a patient of Dr.Argoff. I have started seeing a neurologist who is also in the Albany Med neurology group. I will be interested to see how you make out at your appointment and I’ll have to get this book for sure. This may help when I see my doctor in October. Hoping you have a productive appointment next week!

Sep 24, 2019 · Anxious and Terrified After Surgical Complication in Neuropathy

@lorirenee1 I ordered the massager through Amazon — this is the model,
MedMassager MMF06 11 Speed Foot Massager
There are lots of reviews. I can definitely feel it in my toes but it’s difficult for me to say if it would be considered a deep massage. However, I have only used it once at the lowest setting so there is more experimenting to be done.

Sep 24, 2019 · Anxious and Terrified After Surgical Complication in Neuropathy

@lorirenee1 thank you Lori Renee. Just wanted to provide an update on the foot massager I mentioned. It is from Med massager and has a vibrating platform. It arrived today so it is too soon to give a complete review but I can say it does relieve the burning sensations in my feet. I thought of what you said about your machine not doing a great job on your toes. This machine has a bar at the top of the platform that you can wrap your toes around which provides the toes with a massaging benefit. This unit was pretty pricey but I ordered it based on the many positive reviews I read. Thought I would mention it in case you may want to look into it at some point.

Sep 22, 2019 · Anxious and Terrified After Surgical Complication in Neuropathy

@lorirenee1 I find that walking helps, I think partially because it increases blood flow to my feet. I have just ordered an electric foot massager which is supposed to increase blood flow as well. I do believe there is a mind/body connection so I will also work on sending these healing messages as I am walking. Thank you for the suggestion.

Sep 9, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Hello @artscaping. The Count on Me Club is a wonderful idea. How fortunate you are to be surrounded with such caring neighbors. Thank you for your response. I have an appointment with the pharmacist at the marijuana dispensary on Friday to discuss other treatment options and the information you provided on what works for you will help me when I go for the consultation. I have only used the spray and it is sprayed under the tongue. I think you are correct that it may be more difficult to monitor how much I am actually getting from the spray. When I talk to the pharmacist I will ask about using a tincture and also inquire about using a topical treatment as well (which I have never tried). I remain hopeful that I will find a combination that will help to ease the discomfort. You are a role model as to what can be achieved.

Sep 8, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

@artscaping if I may, I have a couple further questions…it sounds like you use the medical marijuana while you are taking Cymbalta? I don’t know now where I got the idea that if I start taking the Cymbalta I should stop the marijuana. Also, was it fairly soon after starting the Cymbalta that you knew it was going to be beneficial for you?