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Dec 29, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Please keep us informed. I will have surgery in April for a right lung lobe removal. Prayers for you, Jasmine!

Dec 19, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Do you have Dr. Mitchell for your surgeon? I will have my right lobe removed by him in April. Pray you are doing fine. Is it a long and painful recuperation? Please add any guidance you have for me. Best wishes for speedy health!!!!!!!

Dec 4, 2019 · Anyone taking Clofazamine??? in MAC & Bronchiectasis

I'm on my 3rd week of Clofazimine. I'm having stomach issues but nothing I can't stand. My Doc told me to load up on sunscreen and keep covered from the sun. I go out in gloves, scarf, sun glasses and hat always, even to feed my birds & wild ducks. Not looking forward to doing this in the summer! My cough is looser but energy level less. I'm encouraged also, Gayle!

Oct 6, 2019 · Testing Positive and Negative after MAC Treatment in MAC & Bronchiectasis

Terryb, I have been waiting 3 months to get into Jewish. How long did it take you? I'm going to see an infectious disease Doc in Denver who has a license to give me a drug my doc here thinks I need, until I get to Jewish. It seems EVERYTHING is slow except my side effects from these antibiotics! Thanks!

Sep 20, 2019 · Anyone taking Clofazamine??? in MAC & Bronchiectasis

Please keep me posted. I go to Denver in Oct. to find out my next steps, but clofazimine is what my current Doc wants for me and she knows what my culture claimed was most effective. Staying positive is critical and is as intentional as I can get! Thanks for responding!

Sep 20, 2019 · In shock after MAC diagnosis in MAC & Bronchiectasis

Now, they want me to go on clofzimine. Has anybody been on this? The side effects are frightening!

Sep 20, 2019 · Anyone taking Clofazamine??? in MAC & Bronchiectasis

How are you doing, Gayle?