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Sun, Oct 6 1:34pm · Testing Positive and Negative after MAC Treatment in MAC & Bronchiectasis

Terryb, I have been waiting 3 months to get into Jewish. How long did it take you? I'm going to see an infectious disease Doc in Denver who has a license to give me a drug my doc here thinks I need, until I get to Jewish. It seems EVERYTHING is slow except my side effects from these antibiotics! Thanks!

Fri, Sep 20 1:17pm · Anyone taking Clofazamine??? in MAC & Bronchiectasis

Please keep me posted. I go to Denver in Oct. to find out my next steps, but clofazimine is what my current Doc wants for me and she knows what my culture claimed was most effective. Staying positive is critical and is as intentional as I can get! Thanks for responding!

Fri, Sep 20 12:33pm · In shock after MAC diagnosis in MAC & Bronchiectasis

Now, they want me to go on clofzimine. Has anybody been on this? The side effects are frightening!

Fri, Sep 20 12:14pm · Anyone taking Clofazamine??? in MAC & Bronchiectasis

How are you doing, Gayle?

Fri, Sep 20 12:13pm · Anyone taking Clofazamine??? in MAC & Bronchiectasis

I had to get off amikacen, infusion, because of hearing loss within 2 months. I am on Ethrambetol, Azithromycin and RifadinIs (oral) Are their any steps before taking clofazimine? Is the dosage from this less than leprosy? The side effect are very serious. I will be seeing a doc soon to join the research. I have MAC. Any info is appreciated before I go in Oct.!

Wed, Sep 4 10:09am · In shock after MAC diagnosis in MAC & Bronchiectasis

5 years!!!!!!!!! Did you ever take Amikacin infused? That is what I'm on besides Zithromycin, Ethambutol and Rifadin. I am prepared for a year and a half but 5, Oh MY! I know everyone is different. So glad your cavities closed on their own. I pray mine does the same!

Tue, Sep 3 5:11pm · In shock after MAC diagnosis in MAC & Bronchiectasis

I am also on this regime. How did you notice your vision loss?

Tue, Sep 3 5:06pm · In shock after MAC diagnosis in MAC & Bronchiectasis

Has anyone had a hole in their lung due to MAC. I do. I was wondering at what point do they sew it up or? I am so tired of amocacin infusions and my 3 oral antibiotics. It is so restrictive!