About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (2)

Mon, Sep 16 12:37pm · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Thank you for your prompt reply and I apologize for my very delayed response. It has been a rather hectic couple of weeks since my initial post. My daughter has since had and endoscopy, and a gastric emptying study, both test her GI doctor wanted done to rule out any other issues. In between the two she was also admitted to the hospital for a couple of days after being found unconscious by her roommate from severe dehydration/electrolyte imbalance from all of the vomiting. They had her on a full liquid diet with one soft food meal a day but since then have restricted her to full liquid with 3 protein shakes a day until she has her vascular surgery consult on October 12th. That feels like a long wait and a long time for her to be on such a restricted diet when she is already so small but between the liquid diet and the Zofran every eight hours she at least seems to be experiencing much less pain and nausea. While it sounds like the road ahead could still be an uphill battle at times I am thankful for a diagnosis that finally explains all of the pain/nausea she has had over the years. She is thankful too although currently very mentally and physically drained and really wanting to be able to eat solid foods again!

Thu, Aug 29 10:53am · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Good morning, I stumbled across this group while trying to gain more info about MALS. A little background info my daughter who is 22 just had a diagnosis of MALS and chronic mesenteric ischemia confirmed last night at U of M hospital. She has a GI follow up today as well as follow up with vascular surgeons in the coming days. We spent her sophomore and junior years of HS in and out of CH Wisconsin due to severe abdominal pain/swelling and an inability to keep anything down. A CT back then confirmed SMA and an NJ tube was placed for 3 months. The GI she was assigned for follow up did not think it was truly SMA he was convinced the vomiting and pain had more to do with pain signals from brain to gut and so she was prescribed increasingly higher doses of Zofran, Tramadol and amitriptyline to manage symptoms as well as therapy to teach her coping mechanisms. This continued through high school and both NJ and Ng tubes were periodically placed for shorter stints. For a child who had never thrown up before age 15 periods of extreme pain and recurrent vomiting became her new normal. To complicate matters she was diagnosed with Rheumatoid arthritis at age 11 and later in HS with systemic Lupus so whenever GI symptoms got worse doctors were quick to attribute it to Lupus flares and rarely looked further. Problems continued sporadically through college eventually causing her to give up being a collegiate athlete. She graduated this past May and moved to Ann Arbor in August to start life as an “adult” but has landed in the ER 3x this month. CT on 2nd visit showed compression of celiac artery. Duplex ultrasound in ER yesterday confirmed MALS as well as stenosis of mescenteric artery. Vascular surgeons who saw her in ER yesterday said CHW should have placed a stent when SMA syndrome was initially suspected. Sorry that was really lengthy. Would appreciate any insight into what we can expect on the road ahead. Such as realistic recovery times and how much support she may need post surgery as I am a single parent and she is now living alone almost 6 hours from me. Thankfully I have a very supportive boss and may be able to do some work remotely but to further complicate matters I am supposed to have shoulder surgery in the coming month but that may just need to be postponed