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Oct 22, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Hi Jeff,

I have been to UCLA which is a big hospital in Los Angeles where they have specialists. So far no reason to know what is causing my neuropathy. So I've tried different remedies and whatever seems to naturally help the pain.

You are right about not to be angry. It doesn't make it any better so I do feel like I'm able to find ways to cope and stay calm and hopeful about this condition.

Thank you for your tips!

Oct 22, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Good evening @artscaping ,
I've had numerous labs and testing done to find a root cause of the small fiber neuropathy but nothing has come back to say that's what caused it. I do exercise and eat pretty healthy. I have a strong faith in God and that helps me stay positive and cope.

I really hope they come out with some treatment that can repair the nerves.

I'm doing okay without taking medication. It never really helped with my neuropathy symptoms so I would rather find a natural remedy.

I have not explored the medical cannabis option. Would that require a prescription?

My anger about the condition comes and goes. Most days I"m okay but at times this condition can be overwhelming and I can lash out.

Thank you for your concern and help on this. Ashley

Oct 2, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

I kinda new I had it before all the testing was done but pushed for the biopsy just recently to get the official diagnosis which was a few months ago. Yeah it's amazing how Doctor's know so little about the disease and no cure for it. I'm staying hopeful though.

Do you take one medication for yours and has your pain stayed the same level this whole time?

Oct 2, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Hi, I'm sorry for yours too. I've taken drugs in the past months but it only helped with my mood my really my pain so I didn't see why I should take it. I just cope with it. Some days are worse than others as far as the burning pain. It's definitely uncomfortable and seems that when I don't wear any socks or shoes it feels alleviated. Not sure if that's common with SFN?

Oct 1, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Thank you for sharing. Yeah the hardest part I feel like is accepting it.

As far as early stages how can there be nerve regeneration? I understand if you find the root cause then there's a possibility for recovering and correcting the problem.

Is your type of neuropathy idiopathic or did you get any reverse in your symptoms?

Definitely support will be helpful because it's hard to cope with this condition and not having people that can relate to you.

Thanks for much Rachel.

Oct 1, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Hi John, Thank you for all your tips. I will take a look at all the information you've provided. I've tried many of things but willing to see if anything else may help.

My symptoms all started in my feet just tingling at first but now I have a lot of the burning pain and it seems like I'm having some discomfort in my lower legs now too. It's been almost 2 years and I don't want symptoms to progress.

Sep 30, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

I'm 27 years old and I've been dealing with SFN for over a year now. Had the biopsy to confirm and tried various antidepressants. Currently I decided to stop taking medication because I don't want to be on anything. I'm so young and don't understand why this has happened as I'm sure many of you feel. I've always been healthy and don't have diabetes or any known cause. It's so frustrating and every day is a battle to be positive. Some days i'm depressed and others I'm mad. At this point i don't know if I should even see anymore doctors because it's the same drill as in they can't do anything or don't know the cause.

For natural remedies what has worked for relief?
Also have your symptoms of SFN gotten worse?

Acupuncture – don't think it's helped at all.
I've been trying drinking celery juice every day, giving that more time.
Eat lots of fruits and veggies through out the day.

Thank you for your support and tips.