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Posts (12)

Wed, Apr 29 1:43pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

It's just not a smooth ride, is it?! I took my husband to our local ER Sunday night and he was transported to Mayo right away – blood loss and cultures indicated infections, which he also had while in the hospital three weeks ago for his Whipple procedure. Everything in recovery was going well until this episode. Eating fine after Whipple but it seemed tough to gain any weight and energy – maybe it was because the infections were still there, who knows! Hopefully he'll get back on track after this visit and not have another emergency. They are still not sure what caused the sudden bleeding but he'll remain in their care until they have some answers. Nothing appears to be leaking on scans. It sure is a drag not being there for him.

Sun, Apr 19 8:49pm · Pancreatic enzyme replacement in Pancreatic Cancer

That's an interesting idea, thank you. We've probably talked to five different Mayo nutritionists at various stages over this past year and haven't really felt the advice was tailored to my husband's personal situation – it felt generic. I realize it can be hard to give this advice when a person' body is going through so much change, but it would at least feel better if we sensed the advicet was unique to him. Probably tough to do since everyone's anatomy, tastes, needs, health, etc. is so different.

Sun, Apr 19 5:00pm · Pancreatic enzyme replacement in Pancreatic Cancer

My husband has been taking creon since last June. We always assumed the diarrhea was due to chemo, but maybe not since it has continued off and on since chemo ended in December. This is the first time I've heard that maybe this enzyme might be the cause? Does anyone know if the Pure Encapsulation works better? You'd think the docs could suggest trying something different to combat this problem rather than us trying to figure it out on our own. When we paid $1600 in January for John's first Creon prescription of 2020 (insurance deductible had not been met yet), many friends suggested I try mail order from Canada and even Sweden – same creon pills for one tenth the cost! I have not resorted to that yet since our supply is good but am keeping the info handy just in case. John's Whipple procedure last week went well and we won't know for a few weeks yet if he can discontinue using creon. Lots to balance!

Sat, Apr 11 3:36pm · Are you getting cancer treatments during COVID-19? in COVID-19

No visitors at Mayo either but we do video calls and I can also listen in to the Docs when they make rounds, as long as John remembers to patch me in. It's hard but I understand it. Getting a lot done at home though, and it's a break from 24/7 care giving, which is fine since I know he is in good hands. I hope you hear good news on the pathology report! Happy Easter 🙂

Sat, Apr 11 10:07am · Are you getting cancer treatments during COVID-19? in COVID-19

Well, to share some good news, my husband's Whipple procedure on Wednesday was a success in spite of some complications once underway. Dr. Truty and his team are truly skilled surgeons who care – I feel they are just amazing. John is doing well and may even come home by this coming Wednesday, just one week later, cancer-free after a treatment program we began last June (diagnosis was in May, symptoms had begun in Feb/March). I know we are very lucky that he responded so well to chemo and radiation and that he was able to be scheduled for this procedure amid the virus crisis. Although we are apart for our wedding anniversary (33 years today), Easter, and my birthday (this Monday), I feel like we've been given the greatest gift of all. He had so many people praying for him – I know that had a lot to do with this outcome as well. Thank you everyone, God Bless you on your journeys.

Tue, Apr 7 9:39pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

My husband and I were at Mayo Rochester today for final tests in anticipation of his Whipple procedure with Dr. Truty tomorrow. It was like a ghost town but we felt very safe from the virus with the screening checkpoints they had at every entrance, and most people we did see were wearing masks. It was amazing getting a parking spot up close – very few cars in the ramp and few people in the waiting rooms. We are very thankful to be able to continue my husband's course of treatment given all the surgeries that were cancelled lately. We are looking forward to him being cured after a very long year of chemo and radiation!

Mon, Mar 30 10:30pm · Are you getting cancer treatments during COVID-19? in COVID-19

Oh no, where are you located? That is awful news, were you able to talk to your doctor or did you just get the delay notification by email? I'm so sorry. Hoping my husband doesn't get the same news two weeks from now related to his scheduled surgery, such an anxious time for all.

Thu, Mar 26 7:53pm · Are you getting cancer treatments during COVID-19? in COVID-19

My husband's Whipple is scheduled for April 14 – he will have waited 6 weeks for this final leg of his journey since his radiation ended in February (6 months of chemo prior to that). He would be crushed if this surgery were moved but I don't think they consider it elective and we have not heard anything so praying things remain a go AND I can be with him at the hospital. Right now that's not a possibility 🙁