Thank You Merry
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I may be changing oncologists, but that requires driving 2 and a half hours away to see the doctor, which is fine.. because I can apparently get my infusions at a hospital, that is 45 minutes from here.. basically considered like one of their satellite sites for infusions and or scans, etc..
I am also have joint pain and sore joints… however, oncologist sluffs it off and tells me to contact my family doctor and when I mentioned it again to his nurse.. she says that it is not related to cancer or cancer treatments… I don't believe this as I did not start getting this joint pain till several months after immunotherapy started. I was on nivolumab up till two months ago … I had 6 infusions to that date… infusions cancelled due to a high rise in covid patients at our local hospital … the oncologist says it it not the risk of going to the hospital .. he told me I would have 0% chance of survival if I get the virus… not sure why he feels that way.. yes.. I do have stage 4 lung cancer but have no breathing issues and am usually active.. no shortness of breath.. etc.. just had a CAT scan on May 22nd of the Chest.. will get results on June 3rd.. hoping that not getting my infusions did not bring me back to square one with my cancer 🙁
I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.
I actually attended the cancer centre today, but did inquire the day before going if the appointment was still happening since I live 2 and half hours away… I did ask the nurse if they were doing video conferencing…and she said they were in some cases… she did not offer that to me, and since it was my first appointment with this doctor… I did not want to push the envelope… He just explained that the blood biopsy that I had done to see if I had any type of change in my cancer, for a more targeted therapy, came back that there is no change… therefore I did not qualify for the clinical trial/study called CAPTUR… He did discuss, my last results, of my last scan, from my oncologist in the city I live in and he is aware of the one tumor that had grown… I have a CAT scan at the end of May hoping that the tumor that grew is pseudo progression… and if not what my options may have to be… he did indicate there was a clinical trial I could try if radiation was not an option if the tumor does not start to decrease and/or if other nodules/tumors show up..
I have an appointment in London Ontario next week.. to talk about the results of a blood biopsy I had.. going to ask that oncologist some of the questions to try and get clarity… see the difference in answers if any… just sayin 🙂