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Posts (27)

2 days ago · Flu Season and drug-resistant medicines in Lung Cancer

Does the flu shot interfere with chemo or immuno therapy drugs?

Mon, Nov 11 9:43am · Crizotinib in Lung Cancer

Well hope the business trip goes well… that is kind of scary being off all meds… will they do another scan to see what being off all treatment does? or will they just start with the Crizotinib? Hope everything works out for you…. it is a sucky journey to be on for sure… I have my days …

Sun, Nov 10 7:04pm · Crizotinib in Lung Cancer

I was on Carboplatin and Altima… was on the combo for 5 infustions… tumors were shrinking. then they kept me on only the Altima for 7 more infusions… the tumors were still shrinking… I just found out the chemo stopped working and the tumors are growing again and few more are appearing…however…I guess they are very small… I had my first infusion of immuno therapy of nivolumab… AKA: Optivo… a few weeks ago… hope it is going to work… even though I am not doing the same drugs… I thought I would add some insight into my therapies to maybe share drug info… hope your new therapy works well for you….

Sat, Nov 2 7:26pm · Using CBD/THC Oil to fight metastatic lung cancer in Lung Cancer

I have found that oncologist will not give you a straight answer on whether you can take cbd or not.. they say there is not enough scientific evidence to prove it wont affect chemo or immuno therapy… here in Canada anyway

Fri, Sep 20 9:46pm · Exercise during chemo in Cancer: Managing Symptoms

@becsbuddy I currently waiting to hear from the cancer centre with a request to change oncologists.. the second one they gave me is definitely a wrong fit for me… worst than my first oncologist… I asked for a new oncologist if that is not possible I would like to go back to my first oncologist… I left my last appointment which was only my second appointment with the new oncologist with much anxiety with how the appointment went… nothing to do with results.. had to do with her demeanor and how she responded to my questions and stuff like that.. kind of too much to explain… the cancer centre was suppose to get back to me by last Friday or This past monday…and neither has happened… I have to go for my 12th chemo this coming Tuesday and will inquire as to what is going on… I feel this cancer centre is not very passionate to the cancer patients that I have seen go through there or have talked to… pretty sad… but I will continue to advocate for myself until I get the care that I deserve…
Our health care system is failing us…

Thu, Sep 19 7:46pm · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer: Managing Symptoms

Not sure if this will help you… I have to read it sometimes to remind myself to stop feeling so angry or sad about things.. because I have a lot of why me moments.. see below: took most of it from a book I read….

If I let cancer make me bitter or angry, then I would of spent the last days of my life in sorrow and isolation; making a living hell for my loved ones, and be remembered if at all, a bitter old woman who let cancer defeat her.

I would receive their temporary show of sympathy, but in the end they would only have contempt for me and how I left them;

On the other hand:

If I were positive and hopeful, it wouldn't change the day of my death a bit, but, it would mean that I would spend the last days of my life breathing deeply, clearly, contented and blissful, and in love with my family and everyone I met…
I would die a happy woman and be remembered as that brave soul who faced a terrible death with courage, fortitude and aplomb.
I would be cherished by those who knew me.

Why waste months of my life wailing about an end that wasn't even near?

Fri, Sep 13 11:32am · Stage IV lung cancer, what treatments work for you? in Lung Cancer

Hello richcoleen: I have stage 4 Adenocarcinoma of the lung.. not sure of the Malignant Neoplasm that you mentioned. However, I have been On The CARBOplatin and Premetrexed for my first 5 chemo treatments and am now on just the Premetrexed which they are calling chemo maintenance.. No real side effects for me except thinning of the hair. It is shrinking my tumours for the most part… some of the tumours are staying the same.. just thought I would let you know I am not having the side effects.. Did you have any type of mutations? I am showing no mutations at this point but just went to London Ontario in Canada to have further testing of my tissue done through a clinical trial.. where they will do further testings that may show mutations that do not currently show up?? I saw Dr Welch in the link I just put in this email.. also it describes a bit of the Clinical Trial Called the OCTANE study.

https://www.lawsonresearch.ca/news/innovative-study-brings-next-generation-genome-sequencing-london-cancer-patients

Mon, Sep 9 9:18pm · Exercise during chemo in Cancer: Managing Symptoms

@becsbuddy and @georger.. First I want to thank the two of you for reaching out to help me… as I am basically on this cancer journey alone and it helps to know there are people willing to help even if I don't know you… I feel close to you for being there for me. I will begin to take a yoga class on Tuesday mornings at the Hospice Centre in my community. On Wednesday mornings I take Tai Chi at the Hospice centre and will begin to take a physical fitness class on Thursdays at the Hospice Centre as well.. all the classes are an hour in length.. So this is what I have come up with so far…
I do the 8 pieces of brocade of Tai Chi at home sometimes as well… not at often as I should.. but it's just a matter of getting myself motivated. As with most of us… depression sometimes sets in and those days I push myself to do things… I am getting better at getting out even if it is to go to the park and read.. getting out of the house makes me think less of the disease… I do the best to self talk myself into accepting the fact that it is what it is… I was always one to help others … but now my role at work doing that is no longer there and I feel lost at times… being off of work is probably the worst thing that could of happened to me.. now I do nothing but think all the time and it takes me down at times… I just put my big girl pants on and seek education and support from others… Thank you both again soooooooo much…