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Melissa (Lisa)

Health Interests
Blood disorders, Bone, joint, and muscle disorders, Cancer, Chronic pain, Digestive disorders, Eye disorders, Healthy Living, Hormonal and metabolic disorders, Lung and airway disorders, Women's health issues

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Posts (5)

3 days ago · Multiple Myeloma in Blood Cancers & Disorders

I would like to add that I have had bone lesion progression, after 4 rounds RVD. and am being treated at Mayo Clinic, Jacksonville, now. I am on 2nd 28 day cycle with KPD. I am seeing a MM Specialist at Mayo. Plan is for ASCT, if and when MM is down., and I qualify. We have several similar side effects, it seems. I have Kappa light chain myeloma, have had very little M spike, KLC/Kappa-Lamda ratios. BMB was 40% plasma in June, 2019 and 10% in October, 2019. I worry that my bone lesions are from something else, but have been assured that I have MM. I just realized your post was from 2016. I hope all is well with you!

3 days ago · Multiple Myeloma in Blood Cancers & Disorders

Thank you for posting. I am reading older posts. I, too, have paper thin skin on my hands and wrists. I am curious about your adrenal insufficiency. I had a CT of my chest, prior to MM diagnosis in March, 2019. It showed "calcification in one of my adrenal glands, at that time. I have asked my primary doctor, local oncologist, about this several times. Local oncologist only said "it is not cancer". If you don't mind sharing, what are your symptoms of adrenal insufficiency? I have fatique, low motivation, low stamina. It takes me so long to just get anything done some days. I am so sorry you have all of this with MM, too! Best wishes to you.

Oct 31, 2019 · Multiple Myeloma in Blood Cancers & Disorders

I was on Velcade for 4 cycles, with Rev. 14 days on/7 days off. And DeX 40 mg/week. I had terrible neuropathy in hands and feet, the 1st week, and a rash to lower legs and feet, and some high fever for like three days, in the evenings. The 2nd week, my Hematologist held the Velcade, and continued it again on the 3rd week, at the same dose, so I was told. Had less neuropathy, no rash, and no more fevers from it. Was told, my body went into shock during induction. I recieved it in very slow sub Q injections, once a week. The injection sites would be red, then turn brown, and scaly, then resolve.

Sep 8, 2019 · Multiple Myeloma in Blood Cancers & Disorders

Yes, I was having fatique, before, diagnosis. And for about 1 year prior, I noticed I was gradually having more and more sinus and bronchitis infections. From January, 2019, through mid March, 2019, I was not able to fully recuperate from the respiratory problems, and developed new onset asthma symptoms. In March, I was treated aggressively with steroids/breathing treatments, antibiotics, etc., and due to bad chest x-ray, had a chest CT on March 25. This CT showed cleared up lungs, but multiple lytic lesions on thoracic and lumbar spine. Thus leading to diagnosis of MM, in June. I thought my intermittent back pain was from nursing for 25 years, and the fatique, from being 54, and working night shift for 9 years! Now here I am! Sorry for the long post, but just still wrapping my head around it all! Thank you for sharing you and your husband's personal experience! And for your prayers! Will add you both to my prayer list, too!

Sep 6, 2019 · Multiple Myeloma in Blood Cancers & Disorders

I am new to this group, and was diagnosed with MM in June, 2019. I also had multiple lytic lesions, all over, on diagnosis. I am being treated locally, with RVD, now on week 9. I have consulted with a wonderful hemotoligi st at Mayo in Jacksonville, for a possible Autologous SCT. I am my own advocate, at present, and am learning all I can. I need to exercise, and have been walking once or twice a day. I have fatique all of the time, and am also afraid of pathological fractures, so walking seems the safest thing to do, for now. I am also very careful not to fall. Thank you for your post, because I am nervous about the SCT. But 9 years is a lot, after this recent diagnosis, which has turned our life upside down.