Whew, that seems so long ago. Thank you for checking on me, Ginger.
Writing from Mesa Verse National Park, our resting spot after 10 days at ABQ Balloon Fiesta. Wasn’t sure if we would make it to NM after mobility issues from my 9/20 craniotomy.
9/20 Craniotomy to remove 3cm lesion, 98% removed.
Conservative as near language and motor skills.
9/25 Gamma Knife to tackle the other 2 spots and to radiate the cavity.
2.5 hours of radiation.
After surgery, went through steroid hell, slept 5 hours in 5 days. Once off Meds started sleeping in 2 hour pockets. Good, but not sufficient. Rosen, massages, acupuncture, all tried all helped, some. Think getting away has helped the most.
Determined to make it to ABQ. We missed last year (#5) due to mastectomy and I was not going to let melanoma take another trip from me. Left Minnesota after my immunotherapy appointments on 10/3. We drive, actually my wife drove, as I could not drive. Took a walking aid with a seat just to be sure I had a place to rest. Didn’t like taking it, but thankful that I did.
Graduated to quarterly PET and MRI scans, and I have decided on getting a port.
Head back to Rochester tomorrow….
Living life to the fullest!!