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Wed, Mar 4 7:47am · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Hello, was diagnosed with PV due to very high platelet count that led to 2 mild strokes. Am very healthy person overall and surprised that I had 2 mild strokes which lead to PV diagnosis. My main issues were extreme fatigue and an itchy back. Am now doing fine taking1 hydreau pill day and platelets in normal range. Did anyone else have a stroke as a result of undiagnosed high platelet count?

Sep 28, 2019 · Myelodysplasic Syndrome in Blood Cancers & Disorders

I have been diagnosed with PV and an early complaint before having. 2 mild strokes leading to the diagnosis was a right foot problem similar to yours. Three doctors looked at my foot could not diagnose any specific problem and insisted that I just learn to live with it. After the PV diagnosis when I had 2 mild strokes, the hemotogist also claimed that my foot issues had nothing to do with the diagnosis of PV or the strokes. After the strokes, my foot pain and discoloration faded. Now it is back and am concerned about having another stroke.

Sep 16, 2019 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Even though you take hydrea six days, do you still
have symptoms of PV? If so, what are your symptoms and how do you handle them?

Sep 1, 2019 · bone biopsy pain. in Blood Cancers & Disorders

Hello, I was sedated and felt no painful during the procedure or afterwards.

Aug 17, 2019 · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

I am Jak2 and this was diagnosed after 2 mild strokes in which I experienced numbness in my left hand, inside my left cheek and tingling of my left foot. Both strokes occurred in the sa.e week. My platelet count was very high and my BP shot up well over 250. I am 75 and otherwise very healthy. I am on aspirin, hydrea, and bp meds and doing fine but am extremely tired most of the time. How do you all handle the fatique?
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