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Mon, Feb 10 8:41pm · Transplant Caregiver Advice: Got Tips to Share? in Transplants

It has meant so much to both my daughter and her Dad – she is so thankful and appreciative of his sacrifice. He definitely feels very good about being able to do such a dramatic thing for her. As my friend said, "You gave her life once, and her father will give her life again."
The transplant clinic invited donors to come together to discuss their experiences and the folks to whom they donated. He found it very powerful. In time, they will most likely share their story in a more public way.

Tue, Jan 28 8:08pm · Transplant Caregiver Advice: Got Tips to Share? in Transplants

Hello Ginger,

Yes, we were fortunate that my husband was a good match and qualified to donate. Their surgery took place on November 5th, before she required dialysis. Both my husband and our daughter have recovered very well. It's been about 12 weeks now. Neither one is back to full strength yet, but we understand that it can take quite a while. For a twenty four year old girl that only learned in February that she had any issues with her kidneys, it has been a very challenging. Her creatinine level climbed and her GFR dropped so quickly, we knew that if she didn't get a transplant before the end of the year, she would require dialysis.

We know that we were very lucky that she didn't have to wait longer. In October, as the HLA testing was happening, we learned that she had something called an "artefact" which could make it very slow to find a match through Paired Donation. It's just amazing that in such a short period of time, my husband was able to be fully evaluated and then to donate directly.

It's kind of you to check in.
Best regards!
nkdonahue

Mon, Jan 27 4:49pm · Transplant Caregiver Advice: Got Tips to Share? in Transplants

Living with depression is not a reason to be disqualified as a living donor. The donor evaluation team will discuss your history with you. If you have required inpatient care for your depression, it will likely be something that the team will need to explore further. My husband and I were both evaluated as living kidney donors and we brought this up early with the donor evaluation team ourselves. I wish you luck in your effort to donate to your sibling.

Oct 20, 2019 · Your best tips for raw food safety post transplant. in Transplants

@jk Thanks for the welcome as well as your tips. I appreciate your sharing them.

Oct 19, 2019 · Your best tips for raw food safety post transplant. in Transplants

@contentandwell I have not used anything but cool water to wash berries, and I do so just before eating them. Do you use the water and vinegar bath, then store the fruit to eat later? I would be very happy to prolong the freshness of pricey organic strawberries that we enjoy. Given that our daughter is just 24, I am relieved to hear that she may not have to change her diet as dramatically as I had anticipated. Do you have trouble making good choices at restaurants? Avoiding excessive salt seems like a challenge outside one's own kitchen. Thank you for your ideas.

Oct 18, 2019 · Your best tips for raw food safety post transplant. in Transplants

Thank you for your reply! I thought that reducing sodium intake to 2000mg daily would be required. I look forward to getting Moore details from her dietician.

Oct 17, 2019 · Your best tips for raw food safety post transplant. in Transplants

My daughter is preparing for a preemptive kidney transplant in early November. She is in her mid twenties and will recover with us in her childhood home. My husband and I are trying to make plans for her diet post transplant. She has general advice from her dietician, but we would like to find an appropriate cookbook. There are many available that are intended for those with kidney disease. I wonder if there is one that is more helpful for her. Can anyone recommend a cookbook specifically for folks with a kidney transplant? Thank you