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Posts (8)

1 day ago · Any advice out there? in MAC & Bronchiectasis

The first report to come back after my bronchoscopy revealed pseudomonous aeruginosa. I had been coughing a great deal. Pulmonary doc ordered Levofloxicin 500 mg, once a day for two weeks. I normally have tons of problems with antibiotics but tolerated this pretty well. I was already taking probiotics and feel it helped a lot. My cough was completely gone at the end of the two weeks. how many times a day are you to take the medicine? Hope you do well.
Faye

6 days ago · MAC nodules in MAC & Bronchiectasis

Emory Health Care St. Joseph's Pulmonary Dept. in Atlanta, GA. Scheduling number is 404-251-1700. They said you aren't required to be referred but usually are. Best of luck with everything. It is a real learning experience and knowledge is power.

6 days ago · MAC nodules in MAC & Bronchiectasis

Hi gaylewroc. I was at Emory last Friday and it was an awesome experience. Left with so much information and understanding of my conditions. I felt such relief just dealing with someone who actually knows about MAC and bronchiectasis. Thank you for reaching out to me and sharing with the Atlanta location info. One important thing is to let all my doctors know I am not to take Azithromycin for any other condition because it is the only med that can really have an effect of MAC.

Tue, Aug 13 4:48pm · Exposure to bacterium etc. if using night guard. in MAC & Bronchiectasis

Yes. Just two completely different instructions on how to store the night guard. Thanks for your input.

Mon, Aug 12 8:26am · Exposure to bacterium etc. if using night guard. in MAC & Bronchiectasis

I've used a night guard for over 30 years. My dental asst. who works with these devices as well as bridges, partials etc. told me earlier this year that I should wrap it in paper towel and keep it moist (so it does not dry out) while it is in the storage case. I did some searching on the internet and there it said to brush it, sit it flat to dry and then put it in storage case. Any thoughts or solid information. Keeping it moist in storage sound like a germ factory.
Thanks, Faye

Fri, Aug 9 1:13pm · Tea Tree Oil in MAC & Bronchiectasis

Has anyone put a couple of drops of Tea Tree Oil in your nasal rinse? I have chronic sinusitis along with MAC and bronchiectasis. Thanks.

Wed, Jul 31 5:02pm · MAC nodules in MAC & Bronchiectasis

Hi gaylewroc, Thank you so much for the information regarding Dr.Swenson. I called today to see how long it would take to get in to see him. New patient appt. would be mid October. I plan on seeing my current pulmonary doctor for next follow up in 2 1/2 weeks. I will see if he is willing to do a referral for me. If not I will see my primary for one and if not necessary, will just make appt without one. The office said it is not necessary but they usually do get one. Next calls are to my insurances. Thanks again.

Tue, Jul 30 7:34pm · MAC nodules in MAC & Bronchiectasis

Hi Terri, I'm newly diagnosed MAC / atypical TB / Bronchiectasis earlier this year. The pulmonary doc put me on Azithromycin, Ethambutol and Rifampin all on an empty stomach in the morning. I was hanging in there for awhile but after 6 weeks my husband had open heart surgery and I really got off track with losing weight. I've always been thin but with the stress and anxiety associated with his surgery really did me a trick. My follow up appt. with the pulmonary doc ended with him saying I would need to stop all the meds–that I might not be able to tolerate the treatment. His plan at the time was to start me back on the meds one at a time to see if one could be pin pointed as to one that was affecting my appetite. When I went back he said NO–All meds or nothing. He then said, if you don't get your sinus straightened out I won't be able to do anything for you. Saw ENT doctor and now on second round of a different antibiotic and prednisone. My confidence is shaken with pulmonary doc but not sure how to go about finding another one in Montgomery, Al area to go to. I heard it is very difficult to even get in the group here and would go to Birmingham if someone there is good. I read the treatment you did and was very uplifted by the success you had. I'm 73 and just don't know what the future holds. My doctor has never given me a single piece of literature about my disease and was so glad someone put me onto the Mayo Connect. Do you have any suggestion on how to search out a doctor in this area who I might be more experienced that this doc seems to be. Thank you so much. I have learned an enormous amount just this week of joining Mayo Connect. Have a blessed day.