fdixon63 (@fdixon63)

Thank you Sue for getting back so quickly. Appreciate it so much.

Hi Sue, I was wondering about using peroxide (or alcohol) to sanitize neb pieces. Do you have to soak the pieces in it or drizzle peroxide (or alcohol) over the pieces and air dry? Thanks.

Interested to know exact process for cleaning with peroxide. I was diagnosed early last year and joined this group in July. This is the first I have heard of using peroxide. Still learning. Thanks much.

Hi. Just getting around to sending input regarding NAC. In October I had completed two weeks of IV antibiotic treatment via PICC line and at the end of my 28 days inhaling Toby. I had not been able to collect a sputum sample to see if my Pseudomonous A. Was gone. I had read posts about NAC so purchased some. I took one 500 mg and the next day I coughed hard, chest rattled and up comes sputum 4-5 times. I was thrilled but just could not believe that was from NAC. I did not take it that day but did the third day. More coughing up that green/yellow/brown stuff we're familiar with. This happened three times. I was thrilled to be able to clear that stuff out. Now I'm feeling like my old self–not short of breath, eating, gaining some weight back.. I continue doing 3% SC daily and taking NAC once daily. I ask my MAC doctor now he feels about me taking it and he said he has several patients taking it and he said to take 2 twice a day. At the moment I still take only one daily but if symptoms flair up I'll increase it. Hope these comments are helpful. Also my initial lab results came back negative but now waiting for AFB to culture out. Praying it will be negative also. God bless you.

Need clarification on dosages of Vitamin D3. I started taking it many years ago (on my own) and don't ever recall having my levels low and can't remember why I started taking it. I had not been diagnosed with MAC/NTM at the time. That DX came about earlier this year. Anyway I take capsule form 5000 IU (125mcg). I noticed a lot of talk of taking in mg amounts. Is that a prescription D3 and are there options to get it injected??? Just want to get it straight. Thanks to the group. So much good information.

Hi. What is a recommended dose of vitamin D? I'm taking 125 mcg a day at bedtime? I've taking it for a number of years. Not sure the reason I started taking it but sounds like it was a good thing to do.

Thanks for checking with your daughter. Of course what we want to accomplish is to have the pieces sterilized and not damage anything. I wonder what is your daughter's microwave wattage and what is the "low setting" she uses. I guess I'm skittish about experimenting because part of the neb kit was damaged the first time I used the nanobebe. The company said they would pass the question to their development department and get back with me but who knows. Thanks again. Hope you're having a great day. Faye

I can't imagine the struggles you have had and are having. I've been having more frequent sinus infections so presently have been doing daily saline sinus rinsing with daily Nasacort nasal spray. It is so rewarding when I rinse and blow out yellow stuff because I know I'm warding off the next potential infection. I also wear a mask if I go out when its a windy day. I'll pray for you to get an answer to this problem very soon. It sounds like you have done everything you can possibly do but there must be an answer… Faye