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Thu, Jul 25 4:58pm · NETs survivor in Neuroendocrine Tumors (NETs)

Forsure ☺

Thu, Jul 25 4:53pm · NETs survivor in Neuroendocrine Tumors (NETs)

Thank you and take care. 😊

Thu, Jul 25 3:02pm · NETs survivor in Neuroendocrine Tumors (NETs)

Well, last fall, following my surgery I did have gastroscopy biopsies with colonoscopy. Also Octreoscan in nuclear medecine. Plus blood work and pee test such as chromogranin A, 5 HIAA and cortisol suppression test. My surgeon said to have blood and pee tests done every year thru my family and if my results show something he will refer me again to my surgeon. As my results was all negative in the fall I was diagnosted full recovered. ☺

Thu, Jul 25 1:10am · NETs survivor in Neuroendocrine Tumors (NETs)

Last summer (2018), I went in emerg for appendicitis. During the surgery they found out I had a a neuroendorcrine tumor growing in my small bowel my gangrenous appendix was joint to it. So they did a limited small bowel resection with appendectomy. Doctor did not tell right away….a month later I learned they took out cancer. I was shock. Good news they found it on time. So that means I was cancer free and need tests for NETS for 10 years surgeon recommendations.