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Posts (47)

Wed, Sep 16 10:48am · Responsive neurostimulation (RNS) as an epilepsy treatment? in Epilepsy & Seizures

Hello Casey (@caseybach). I edited the name of the discussion in hopes of bringing more people in.

Great question about the use of RNS as an epilepsy treatment. I thought I'd also bring into this conversation @mmas @michele0161 @dawn_giacabazi @aroman @mythreeguys, who may have some input.

You mentioned your son has been having seizures since he was 7, can you share how old he is now? Is RNS something your doctor is recommending?

Fri, Sep 11 5:55pm · High Premenopausal ROMA and HE4 and ovarian problems in Women's Health

Hello @sandyjr. I read your post and wanted to reach out. Crohn's disease can do so many things. While we wait for others to join the discussion, I did find a few things that might interest you:
– Gynecologic Aspects of Crohn's Disease https://www.aafp.org/afp/2001/1115/p1725.html
– Crohn's Disease and Your Menstrual Cycle: https://www.healthline.com/health/crohns-disease/crohns-disease-and-your-menstrual-cycle
-Crohn's Disease in Women: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3804567/

You mentioned high readings in your post, can you tell us more about that? Do you know what kind of tests her provider ordered?

Looking forward to seeing more of your posts,

Tue, Sep 1 9:12am · Can peripheral neuropathy cause pain in women's genitalia? in Women's Health

Hello @rwinney, thank you for starting this conversation. I think you are right, our bodies can be so complicated and challenging sometimes- then bring everything else in and we have a story with lots of plots, twists and turns. In your post, you mentioned you have external burning, stinging, and discomfort, the feeling of being torn, and also pelvic pain. I'm wondering if you have given any more consideration about talking to your provider? I know there is a lot to consider.

We also have a Neuropathy group (https://connect.mayoclinic.org/group/neuropathy/), although the conversation there is a little different. Still, there might some value to reading the discussions.

I agree with you, there is so much to talk about and the topic may not be easy for some people to discuss. I am happy you brought it up and hope that we hear from a few more about their experiences. You also mentioned lifestyle changes and pelvic exercise, and I'm wondering if you've tried those yet and if so, have they been working out?

Wed, Aug 26 11:17am · Osteoprosis Treatment and GI Issues in Bones, Joints & Muscles

Hello @cardinal26 and Welcome to Mayo Clinic Connect. We are happy to have you here! I think you have come to the right place to link with others with shared experience around osteoporosis and GI issues. I would like to invite @contentandwell @sue225 @artscaping into the conversation. While we're waiting for others to join in, I have done some research on the web and was able to find multiple sources about the relationship between IBS and Osteoporosis. Here is an interesting article called Osteoporosis and Gastrointestinal Disease: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2950667/

Have you spoken to your provider about concerns between IBS and treatment? When were you first diagnosed with Osteoporosis?

Looking forward to reading more of your posts,


Fri, Aug 14 4:03pm · Has anyone taken the targeted therapy osimertinib (Tagrisso)? in Lung Cancer

Hello @lynnycooks and welcome to Mayo Clinic Connect- so happy you are here! This is a great place to connect with people with similar experiences and ideas. When were you diagnosed? If you are comfortable, can you tell us more about health journey? I'm looking forward to reading more of your posts!

Wed, Aug 12 5:24pm · Pain in the butt - Bilateral Hamstring conjoint tendinosis in Chronic Pain

Hello @lgerkin– this does sound like a pain, and I'm sure has not been fun to deal with! Great question related to enzymes and supplements, especially considering you are on a blood thinner. I am glad you are going back to your provider and hopefully can find some relief from the pain, and maybe find some answers. Dealing with multiple joint pain and bilateral hamstring tendonitis can put a wrench on everyday life. I would like to bring in @sparshall @richman54660 @jenniferhunter @johnbishop – they might have more to add.

As we wait for others to join the conversation, I was able to find the following information. Of course, before trying any supplement I would recommend you connect with your provider to make sure it won't interfere with any meds, etc.. Here is the study: "Nutraceutical supplement in the management of tendinopathies: a systematic review" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4915461/

Other than the cortisone shot, are you on any medications for treatment or pain?

Wed, Aug 12 4:58pm · Pregnant or hormonal imbalance? in Fertility & Reproductive Health

Hello, @cherh and Welcome to Mayo Clinic Connect. You’ve come to the right place to talk with people who have similar experiences with health and to get support from members who understand what you are going through. It can be stressful when menstrual cycles don't come as usual. While we wait for a few others to join in, I did find a few links that might help:

– "14 Possible causes for irregular periods" https://www.medicalnewstoday.com/articles/322643
– "Many Possible Causes of Irregular Periods" https://newsnetwork.mayoclinic.org/discussion/many-possible-causes-of-irregular-periods/
_"Should you take a pregnancy test? 10 signs "https://www.medicalnewstoday.com/articles/323135"

If you are really worried, I would think about connecting with your provider. Has anything changed this month? Are you under stress, on medication, etc.?

Wed, Aug 12 9:58am · Divot (or Dent) in Thigh, Five Months After Giving Birth in Fertility & Reproductive Health

Hello @houtoden, and Welcome to Mayo Clinic Connect. Connect is a great place to connect with people who have similar experiences with health and to get support from members who understand what you are going through. @lmo2020 @bill54321 have commented about divots after giving birth, they might be able to share some ideas. I encourage you to read the messages in this discussion as have shared some information and experiences that I think you’ll find useful.

-I look forward to seeing more posts from you.