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Posts (8)

Fri, Oct 11 1:41pm · Percussion vest in MAC & Bronchiectasis

I need a prescription for the saline. I found it online without a prescription but it took 3 months to receive from out of the country. Too long!

Fri, Oct 11 7:00am · Percussion vest in MAC & Bronchiectasis

I have the Hill-Rom vest. I strongly suggest you try any vest for at least a month before purchasing one. For me, it was minimally effective and a bother to use. What has really worked as an airway clearance for me is 3% hypertonic saline via nebulizer. It is inexpensive, relatively fast and easy to use. I use it twice a day and it really does a wonderful job of bringing up mucus. Best wishes!

Mon, Sep 9 11:41am · Losing weight due to MAC in MAC & Bronchiectasis

Thank you for your positive comments and suggestions!

Sun, Sep 8 11:38am · Losing weight due to MAC in MAC & Bronchiectasis

Eating is not a problem for me although I do forget to eat! Used to laugh when I heard people say this. No nausea. For the first time in my life I am not feeling guilty when I crave and eat pizza! I even indulge in a full strength beer while doing so! Still the weight continues to come off! Wish I could bottle this!

Sun, Sep 8 11:33am · Losing weight due to MAC in MAC & Bronchiectasis

Thanks so much for all the doable ideas!

Sun, Sep 8 11:17am · Losing weight due to MAC in MAC & Bronchiectasis

All my life I have fought weight gain. Now, I am losing weight without wanting to do so. Recently diagnosed with MAC. Waiting to be seen at NJH before starting any treatment. Only symptoms are continuing weight loss, extreme fatigue and cough, controlled by airway clearance with 3% hypertonic saline via nebulizer. Am eating everything I want to eat. Still losing weight! Any ideas to help stabilize weight? Thanks!

Fri, Jul 26 12:29pm · Losing weight due to MAC in MAC & Bronchiectasis

I keep bottles of Ensure Plus in the refrigerator and several times a day I pour a small glassful and chug it down. So far, so good. This way I don’t get filled up and still add calories to my daily intake. I never would have dreamed I would be facing a weight challenge in this way! All of my life I had a challenge keeping my weight down!

Sat, Jul 13 10:25am · Disinfecting nebulizer in MAC & Bronchiectasis

I use 1 part vinegar to two parts distilled water.. I use it in the nebulizer for about two minutes then soak the parts in the vinegar/water solution for about 20 minutes. Finally, I rinse parts with distilled water and air dry. I only do this once a week. Other times I rinse parts with distilled water only.