Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (6)

Oct 28, 2019 · Safety of repeated imaging and scans? Pandora’s box is open in Cancer

I have the same concerns. After all, it is radiation! I have to have CT scans with contrast every 3 months, for the rest of my life. Stage 3A adenocarcinoma of the lung and subsequent pneumonectomy.

Oct 28, 2019 · Have you ever had hiccups with or after chemotherapy? in Cancer: Managing Symptoms

Thank goodness I'm not crazy!
I've never been much of a hiccup person so I've been baffled at the numerous times I've been getting them in the last few months. Alas! This could be the answer. I ended chemo at the end of August and I still have bad hiccups. Sometimes multiple times a day. One of my boys mentioned it the other day, and I told him I have no idea where they're coming from, that I guess it's just my new normal. Like so many other things.

Oct 28, 2019 · Waiting for scan results. Is this part of scanxiety? in Cancer: Managing Symptoms

I always log into my portal and read the radiologists report. It's usually uploaded within hours of my scan.
There are times that it takes a bit logerbwith radiology due to the amount of images, but I always have the report prior to my oncology appointment.
Are you not able to do this?

Oct 28, 2019 · Heavy perfume in medical facilities, or anywhere, really in Lung Health

Some people just don't care. There are signs here at Mayo Phoenix about perfumes and sensitivity and to please refrain from wearing any while entering this bldg etc.
Maybe they've cut down on the amount of offensive perfume wearers, but even a sign at the entrance hasn't completely done away with them.
While a very light, properly worn scent doesn't bother me much, over use feels as if my last lung is getting squeezed of its last breath.

After my pneumonectomy, and subsequent chemotherapy, I became even more sensitive to perfumes and other strong smells. Believe it or not, the radiology technician at the hospital, who came in every single day I was hospitalized, practically bathed in Patchouli oil. It doesn't get any stronger or more offensive than that. At least in my opinion. It's as if someone strangles their from you. Even if it's an small amount they wear. I finally had to tell her that she needed to warn me before entering my room so I could cover my face. She was kind and apologized but continued to wear it.
Patchouli must have come back into style as I'm smelling it more and more in the last year. Back in the 60s, it was just worn by us dirty hippies to mask the smell of pot 😂
(just kidding of course 😉)

Jul 2, 2019 · Lung Cancer and Looking to 2019 and Beyond in Lung Cancer

Hi Merry,
Thank you for the quick response. I will try to view it from my tablet, and then move on to my laptop. I'll get it figured out.
My recovery from the surgery was phenomenal. Or so I'm told lol
I'm still having nerve pain but I am only 7 weeks out.
I had a pneumonectomy, removal of the entire right lung. The thoracic surgeon as well as the nurses have all said my recovery has been much better, and quicker than the highest percentage of patients they see with the same surgery.
Today is day 7since chemo and I'm still vomiting. This can't possibly be right. I've lost another 10 lbs this week. I'm down to 94. Unfortunately, it continues in a downward trend, and obviously not something I'm wanting right now.
Carboplatin and Alimta is what I'm getting. The nausea meds aren't working, and even ice chips cause me to vomit. I've taken to sucking on pieces of watermelon for moisture. I can't swallow the pulp unfortunately.
I am not on the minimum MG available for those drugs, although I was lead to believe I would be. I'm getting 700 mg of one, and 500 mg of the other. I know that's not huge, but definitely higher than the minimal.
I have an appointment tomorrow with the thoracic team, and while there will see if I can maybe meet worh someone from oncology. As of right now, this is not something I care to continue. Especially when no one is willing to give you any idea of the time you may be gaining.
Oh, btw, my tumor was large, about the size of a peach and towards the chest wall. At first no lymph nodes involved but after removal, 3 of 30 did have it. Didn't travel though, just in the ones right by the mass. Like it kinda rolled in there. Lazy cells lol
Gosh, I've written a book. My apologies.
On to my tablet!

Jul 2, 2019 · Lung Cancer and Looking to 2019 and Beyond in Lung Cancer

Hi Merry
Diagnosed with adenocarcinoma on April 10th. Pneumonectomy (right lung). May 9th. Just started adjuvant chemo last Tuesday. They said it was light. It's been brutal for the last 4 days. Enough about me, just wanted to give you a little history.
I was looking forward to reading your blog but I'm not able to access it. Could be my browser but thought I'd check with you first.
Happy Tuesday