Badges (1)


Member has chosen to not make this information public.

Pages (1)

Posts (23)

Tue, Sep 10 10:26am · Initial Visit in Jacksonville- How Long Should I Expect to be There? in Visiting Mayo Clinic

@socagirl hello! I’m a liver transplant recipient at Mayo Jacksonville. I had my initial visit one year ago. I was told ahead of time that I needed to be there for 3 weeks to complete my initial visit. It may be different for your medical issue. You may need to contact Mayo to find out how long your initial visit will be. Wishing you the best!

Thu, Sep 5 5:37pm · Why Choose Mayo Clinic for Transplant Care? in Transplant

Being a liver transplant recipient, I agree with the 5 points listed in this article. Thank you Mayo Clinic for getting me through my liver health crisis!

Wed, Aug 28 3:40pm · Liver transplant support group in Transplants

@rosemarya In December 2017 my PCP noticed by bloodwork indicated a fatty liver issue and requested I see a Gastroenterologist. I did beginning in January of 2018. He had me get a colonoscopy and endoscopy. I had polyps removed and varices in my colon and esophagus. In April, I had tests and a liver biopsy. I did not have liver cancer but was diagnosed with end stage cirrhosis of the liver, NASH in mid-May 2018. My MELD was 10 at that time. My health was pretty good until the end of October. It went downhill quickly. My transplant was on February 2nd of 2019. I wasn’t listed until the end of December my 3rd hospitalization in 2 months. By then I completed a left heart cath, a right heart cath and a mammogram required by my Mayo Doctors. I was considered “deferred” until then. When I look back in time, the most pronounced symptoms were fatigue and memory issues. I was 63 years old at transplant.

Mon, Aug 26 10:47am · Liver transplant support group in Transplants

@craiger I had a liver transplant in February of 2019 at the Mayo Clinic in Jacksonville. My pre-transplant symptoms were extreme fatigue, very weak leg muscles, hand shaking, trouble with my short term memory and leg cramps. I was always very cold all of the time. I did not have shoulder pain. I was hospitalized for hepatic encephalopathy once in July of 2018. Last fall I began to have ascites with paracentisis once a week. I also had kidney failure and was hospitalized 3 times from November to the end of January. The last weeks before my transplant I had a terrible time eating anything and mostly ate soup. My MELD was 44 and increased to 47 the day I was readmitted to Mayo. I received the transplant that night. I did not know a MELD could go that high until meeting 2 liver transplant patients while waiting for an appointment. NASH was my diagnosis. I wish you well!

Fri, Aug 23 7:26pm · Your Tips on How to Get Off to the Best Start with a New Specialist in Visiting Mayo Clinic

@jeanern01 Hi Jean! I was treated at the Jacksonville Mayo Clinic. It is a quite a drive from Pensacola but worth the trip. We lived in Panama City until Hurricane Michael hit. I then lived at my son’s in Daphne, Alabama afterwards until the end of December 2018. You should be satisfied with the care at this location too!

Sat, Aug 17 6:47pm · The MELD Score: Definitions and Frequently Asked Questions in Transplant

@rosemarya Thank you! I almost had to have a liver and kidney transplant because I was hospitalized 3 times for kidney failure but they got my kidney issue straightened out before my transplant.

Sat, Aug 17 6:42pm · The MELD Score: Definitions and Frequently Asked Questions in Transplant

@contentandwell Thank you for your well wishes! I did not know the MELD score could go over 40 either, until meeting 2 liver transplant recipients by chance while waiting for an appointment at Mayo. They both came to Mayo in Jacksonville after being treated at hospitals near their homes. They told me there stories of having MELD scores over 40 and receiving their transplants in about 1 week after arriving at Mayo. Take care!

Fri, Aug 16 5:56pm · The MELD Score: Definitions and Frequently Asked Questions in Transplant

With a MELD score of 39 in late December of 2018, I was told I was at the top of the list but was also experiencing kidney failure. My MELD was brought down to 34 and was released from Mayo Florida’s Hospital by the end of January 2019. Strangely I was happy to hear about my place on the list but also was very ill. I was readmitted a week later in very poor condition with a MELD of 44. Later that night my MELD was 47 and was extremely ill with terrible fatigue, chills, and was unable to eat much. Then received the news that a liver was available and I would have a transplant during the night into the next morning. I was not afraid but glad that I had the chance of getting a new liver. Initially I thought it would take about 2 years to possibly get a transplant when my MELD was only a 10. It actually turned out to be 8 months from the diagnosis and 1 month after being listed. Thank you Liver Teams for a chance of a longer life!