About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (3)

Mon, Oct 28 6:20am · MAC Treatment: When will I see side effects? in MAC & Bronchiectasis

Started a little over a week ago with the “big three” for my mac lung. So far no side effects at all except the orange urine after rifampin dose. Appetite is great with no changes, no fatigue which I have never had even before started taking.

Fri, Jun 28 5:08am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you for responding. I am not a medication taker so hearing this made me feel better. I have to check with my insurance but I definitely will check into the Mayo Clinic.

Thu, Jun 27 5:59am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I was diagnosed with Bronchiectasis about a month ago after 15 years of clearing my throat and bringing up sputum and being told it is just post nasal drip no worries. I was put on Amoxicillin for 14 days and Everything has gone away. No more clearing throat, cough, sputum, chest tightness. However I was waiting to see my dr for follow up to let him know that I still had a full pain when deep inhaling on left side. He called me yesterday to tell me that they discovered MAC and he is referring me to an infectious disease specialist and I will be on antibiotics for 6 months to a year. At first I thought no biggie until I read all the horror stories. I have none of the symptoms of MAC. No cough, fever, have never experienced fatigue, no diarrhea, no weight loss, I love food and very much enjoy eating, no night sweats, chills. I don’t get it. Your post made me feel better about the meds and side effects. When I was researching I thought if I am not experiencing any ill effects then why do I want to take something that will make me ill.