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Aug 9, 2019 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi, my name is Tim. I had the surgery in January of 2013. I was sent a DVD prior to surgery and told to have all of the family that might come to see me watch it. It addressed how patients look following this surgery. I can tell you that it was very accurate. When I came to ICU there were lots of tubes and wires and I was very grey. My brother had not watched the DVD and thought that I had passed away.
For about a month after surgery my right shoulder was very painful. I attributed this to my arms being held back above my head during surgery. This pain went away after the first week of cardiac rehab. I never felt any pain around my sternum.
Regardless of the shoulder pain and the way things looked in the ICU, I received excellent and my life is so much better today. As a matter of fact, I am certain that I would not be here today without the excellent care I received at Mayo.

Jul 28, 2019 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Dr. Schaff did my surgery six years ago this past January. I waited only a couple of weeks, but it was an emergency situation. He is truly a great surgeon and his fellows were first rate doctors as well.

Jul 23, 2019 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

If you run into trouble on the test then stop. You are not expected to go beyond your limits.

Jul 8, 2019 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

The first thing is to talk with your primary doctor and get a referral to an interventional cardiologist. They may do an ultrasound of your heart called an echocardiogram. In the meantime, if caffeine bothers you then stay away from it. Reducing, sugar and caffeine will make a world of difference in how you feel.

Jun 13, 2019 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hello, my name is Tim. I had septal myectomy surgery in Rochester, MN on 1/4/2013. I have no idea why I was drawn to this site but I am here now. I have read and replied to a couple of posts. I just want anyone that is worried about having this surgery to know that life afterward is awesome. I am happy to talk with anyone at any time.

Jun 13, 2019 · Am I really ready for this in Hypertrophic Cardiomyopathy (HCM)

I told myself for a few years that I was just fine. I was short of breath climbing stairs because I needed to exercise more and lose some weight. I joined a community center gym and started walking on their track. I noticed that every time I walked more than a lap my jaw would start to hurt. I looked for answers on the web and in fitness magazines. I talked to a coach at the gym and they told me to drink more water. I drank water and kept on walking. I wasn't big on doctors so I didn't go much. My entire life I had heard from them, "Did you anyone tell you you have a murmur? It's nothing to worry about." I stopped doing a lot of things that I love to do, but it was just one here or there and I chalked it up to being busy and not having time to hike or golf.

I said before that I don't like doctors and I don't go to them, typical guy. I woke up one day and looked in the mirror to see a guy with butter yellow skin and lemony eyes staring back at me. I knew I had to go and see a the doctor. She took one look at me and sent me for tests. An hour later she told me that I needed to have my gall bladder out and sent me to the hospital. The hospitalist agreed that I needed the surgery but informed me that nothing would happen without the approval of a cardiologist and I was admitted.

Several days and tests later I was antsy to go home and get back to work. I asked the cardiologist to approve the surgery and/or send me home. It was then that she asked me if I had ever heard my own heartbeat. She placed her stethiscope on me and had me listen to her heart. It sounded just as expected, steady, strong and regular. She then put it on my chest and wow. My own heart sounded like a bag of sand being dragged across the floor. SHHHHHH Boom, SHHHHHHH Boom. She said she would not send me home because she did not believe that if I left I would ever make it back.

I will cut the story off here, but remember I waited a long time. I denied that I had an issue. I barely made it in for help. Please do not be like me. Don't deny yourself the chance to make things right and risk missing that last chance. Doctors Ommen and Schaff are incredible people with schedules that are packed. People come from all over the world to be care for by these brilliant men and their teams of doctors. They don't operate for fun or because they need the billing. They operate to save lives. I am truly thankful that my life intersected with theirs for a short time.

By the way, the incision in my chest never hurt. I felt at least 100% better every day.

Jun 13, 2019 · Freaking out a bit - Upcoming surgery! in Hypertrophic Cardiomyopathy (HCM)

Hi. I am also 51 years old. I had this surgery on 1/4/2013. Like you, I had known that something was up for a long time. I had been slowing down and being less active for a couple of years and coughing all the time. Walking up one flight of stairs to my office left me wishing for a nap. In October of 2012 I started having issues with severe shortness of breath and falling down. I went to see my cardiologist at the end of October and collapsed in her office. I had an defibrillator implanted on 12/5/2012 and it saved my life on 12/7/2012. I went to Mayo on New Years and met Dr. Ommen on 1/2/2013. I met Dr. Schaff, a brilliant surgeon, on 1/4/2013. He performed the surgery, and yes, it is an open heart procedure. He and his fellows were with me every step of the way and gave me confidence that everything would be OK.

I have to say that within a couple of days after surgery I began to feel better. I returned home to Indiana a week later and started Cardiac Rehab. I had some pains along the way, but every time I went to rehab I felt better and had more endurance. Today I play disc golf nearly every day and walk at least three miles each day. I hike and backpack with my sons. I have a great relationship with my wife. These are things I would not have experienced without the work of my cardiologist in Indiana, Drs. Ommen and Schaff and the entire staff at Mayo.

You have probably had your surgery by now and are on the mend. Follow every direction you are given, get into cardiac rehab and stick with it. You will be enjoying a great life and will get a chuckle when people tell you to slow down as you walk to meetings, lunch or wherever you want to go.