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Posts (7)

Oct 30, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

All suggestions are valuable!

Oct 11, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

We do Xarelto and it seems to have helped. No new ulcers would be a blessing!🙏

Oct 1, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

My husband was only diagnosed in January but had been suffering with for 2 years. We had been going to a Wound Care Center who just debrided and tried differing wound dressings. Finally in December one of the doctors at the Wound Center said we really needed to see another vascular doc since the first one had found nothing wrong and she was convinced vascular issues were the root of the problem. In January we serendipitously encountered the very doctor she wanted us to see when he was admitted to the hospital with heart issues! He then referred us to derma pathologist who did a biopsy and diagnosed LV. Since then we have been desperately seeking help. Hyperbaric treatment was recommended in the research I found but Medicare will not pay for it unless you have diabetes. We are now going to UT Southwest in Dallas to be tested to see if Hyperbaric is even feasible for his body. They have said they might put him in a trial just to get it approved. We go Friday for the assessment. It is a horrible disease and I admire my husband for not giving up. He does his own wound care now with home health only coming twice a week.

Sep 30, 2019 · Livedoid vasculopathy in Blood Cancers & Disorders

I'm wondering if this thread or another is still active. I've been checking on Mayo sites, but have found nothing. Thank you.

Aug 6, 2019 · CRPS in Chronic Pain

My husbands pain doc in Jville Texas has given him lysis of adhesion injections that have worked wonders. They eat at the scar tissue and relieve the nerves. His name is Peter Scirianni. You should research him.

Jun 26, 2019 · CRPS in Chronic Pain

My husband has had CRPS for years and finally found a wonderful pain specialist in Jacksonville, Texas who created a protocol including a process called Lysis of Adhesion. The improvement has been miraculous. It did take several injections, but the difference is incredible. Hope this helps.

Jun 20, 2019 · Bipolar and ideas of how to help ourselves beyond medication in Mental Health

I take it occasionally for itching and have noticed recently I will have strange vivid dreams at night after taking it at bedtime.