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Posts (5)

Tue, Aug 20 12:56pm · High grade Glioma - What questions should I ask? in Brain Tumor

In answer to your questions, @eileen61, my husband did amazingly well during his radiation & chemo treatments with very few side effects. He took the prescribed anti-nausea medicine before chemo and didn't get sick. The most notable side effect was hair loss on the left side of his head where they're targeting the tumor area. He had only minor fatigue and continued to work during treatment, thanks to a very understanding, flexible boss. His follow-up MRI is now scheduled for Aug. 30, and we'll meet with the oncologist on Sept. 3 to learn the results. We're very optimistic and hopeful. Our situation sounds very similar to @debraannk's husband, where he feels as healthy as before all this. He's also planning to begin that next round of chemo (pills) after our Sept. 3 appointment, and he'll do that for six months. Regarding where to stay, @eileen61, you may want to ask a Mayo case worker/social worker to assist you with this. I think there's a Residence Inn next door, and there's also a facility that Mayo has, but I don't know much about it. I understand it's always full and a blessing if you're able to get in, but I believe it's for people in your same situation. Check into it!

Mon, Aug 19 4:08pm · High grade Glioma - What questions should I ask? in Brain Tumor

Another book I'm reading is "Anti Cancer – a new way of life" by David Servan-Schreiber, MD, PhD. He also was diagnosed with GBM and battled it for 19 years. Good advice on diet and supplements – things we can control.

BTW, the nine key factors in Dr. Kelly Turner's radical remission book are:
1. Radically changing your diet
2. Taking control of your health
3. Following your intuition
4. Using herbs and supplements
5. Releasing suppressed emotions
6. Increasing positive emotions
7. Embracing social support
8. Deepening your spiritual connection
9. Having strong reasons for living

I personally would also include Exercise as a 10th.

Mon, Aug 19 3:32pm · High grade Glioma - What questions should I ask? in Brain Tumor

Just a quick note in support of and in gratitude for @marcyprof's message. Beautifully written. My husband underwent surgery May 13, 2019, and subsequently had radiation and chemotherapy treatments at Mayo for six weeks. He is doing very well … feeling good and still working. We're anxiously awaiting his follow-up MRI in a few weeks. In the meantime, we're also reading books, including "Radical Remission" by Kelly A. Turner, Ph.D., which provides a great deal of hope. We're following the advice and are optimistic about the future. I recommend it as well. Also re-read that last paragraph of Catherine marcyprof's message … "No one knows the future … We have unsuspected strengths in us that can help heal …" God bless you and everyone who is facing this devastating diagnosis. Keep the faith.

Fri, Jun 21 3:49pm · Radiation treatment and supplements in Brain Tumor

Thank you, @lisalucier, @francine6829, @merpreb, @reibur1951, @becsbuddy, for your responses. I should let you know that my husband is the one who has the brain tumor (GBM, grade IV). The only time we met with the radiation oncologist was May 29 (two weeks after surgery), and at that time when we were hearing about treatment for the first time, I/we weren't thinking about nutrition – just radiation and chemo. We met with the nurse educator June 7, which was when we learned about not taking antioxidants and supplements. Subsequently, I bought the “Natural Strategies…” book, looking for anything I could do to help – and it seems like the only thing we can control is what we eat. I haven’t been able to get an appointment with a nutritionist or dietitian. Need doctor’s orders, and we don’t have that yet.

I went to a session yesterday where I learned more about the proton therapy, and we’ll hold off on the supplements. The next appointment with the radiation oncologist is a week from today, and we’ll plan to discuss adding supplements with him then. Thanks again, everyone!

Wed, Jun 19 10:03am · Radiation treatment and supplements in Brain Tumor

We were told by the radiation oncologist's office to not take any antioxidant supplements (such as Vitamin E succinate, CoQ10, curcumin or magnesium) because the radiation therapy uses radiation to cause oxidative damage to cells, and the antioxidant supplements would work against that. However, I'm reading "Natural Strategies for Cancer Patients by Russell Blaylock, MD (internationally recognized, board-certified neurosurgeon), and he highly recommends supplements because they support healthy cells and not cancer cells, and his patients have had good outcomes as a result. There's a compelling argument FOR supplements. We really want to take some supplements but, of course, don't want to go against our doctor's advice. Clinical studies I've reviewed online are mixed. I'd like to hear your experience and/or advice. Thanks!