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Jul 2, 2019 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

I went for my follow up with cardiology this morning and by chance got a doctor who was filling in. He says my heart is fine other than the Pots and that it's insane of my PCP who is also in this medical group to withold MRI. He ordered a cervical, thoracic and lumbar this morning so now I am just waiting on prior authorization. I was so relieved I broke down in tears!

Jun 12, 2019 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

That's what I'm pushing for now. I used to work for neurosurgery and just had my endo send over a referral to them. They can at least order the MRIs

Jun 12, 2019 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Thank you for this! The only did an MRI on my brain two years ago but I didn't have lesions then

Jun 9, 2019 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

That is awful! I'm so sorry. Luckily I have insurance that allows me to change doctors so I simply fired her. I got hit by a foul ball at a baseball game last night. It would have hit me in the head had I not honed my reflexes through karate before my symptoms started getting bad. The emergency room said the X-ray can't see the fracture because there is too much fluid and swelling but this morning I am able to move it much more so I don't think it is broken.

Jun 7, 2019 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

**Update**My regular doctor told me I was "slightly anemic" 2 months ago and if I'm tired I should take a B12 supplement. Blood work on Wednesday revealed that I am severely low in iron. My B12 and Folate are normal.

My regular doctor said I am probably pre-menopausal despite no changes or problems in my cycle aside from being slightly heavier. She said lab work would show this via a high LH level. My LH is actually quite low.

My regular doctor said every neurological symptom I am having is related to my diabetes despite the fact that my A1C is a 5.9 and has been UNDER 6.4 FOR ALMOST TWO YEARS.

My regular doctor has literally been wrong about EVERYTHING.

My regular doctor is fired.

Saw my Endo today. We are starting with an iron supplement but with all of the gastro issues I've been having he anticipates infusion will be necessary.

These lows account for my tachycardia, exhaustion, low blood pressure, headache and dizziness and feeling cold.

He further said MRI IS ABSOLUTELY NECESSARY because all of my symptoms point to something happening in my spine. He is sending me to a physiatrist ASAP as they can do everything a neurologist would do as far as testing without the 6 month wait.

Still waiting to hear from cardio.
Scheduling endoscopy to find out why my body won't absorb iron, because I eat a lot of it.
Scheduling analysis of Scn9a gene mutation to confirm primary erythromelalgia that occurred in adolescence as strange sensation could be attributed to that history. There is a 50% probability of passing this down.

Jun 5, 2019 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

I agree. It's not like she's paying for it, I am! I run into this a lot unfortunately. Doc sees diabetes and suddenly I can't possibly have anything else.

Jun 5, 2019 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Unfortunately I am still undiagnosed. I am hoping MRI will confirm diagnosis before my heart issues require pacemaker which will make MRI impossible.