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Posts (11)

1 day ago · Percussion vest in MAC & Bronchiectasis

@windwalker Hi, I hope you can advise me please. In the first 6 months of this year I was ill with lots of symptoms, lots of coughing and large amount of phlegm, weight loss, fatigue etc. I had +ve sputum cultures for mycobacterium chimaera in 3 out of four samples. My CT scan showed a very small nodule (5mm) and my lungs have no scarring or signs of damage or bronchiectasis. I have a repeat CT scan scheduled in Jan 2020.
I am feeling much better though in the last two months. The thing is my only symptom now is a dry persistent cough and I don’t produce any phlegm.
My last appointment with my respiratory consultants in November would have been an assessment to see whether I need to start the long term antibiotics treatment. They say since my symptoms have improved they would advise to put that on hold until a review after my next CT scan.
Is the symptoms I described normal? I’m still coughing persistently. Should I be worried? I have asthma but it has been under control for 20 years and I have not had the need to use my inhalers very often. I’m not wheezing and not breathless. Thank you everyone for an excellent site. Very glad I’m connected here. All best wishes to all of you.

Wed, Oct 2 7:37pm · Best Shower heads for MAC in MAC & Bronchiectasis

@ginak
Ditto to everything you mentioned and my Dr said and recommended exactly the same. Phew!

Wed, Sep 25 8:00pm · Mysterious shortness of breath in Lung Health

Haha, I was just about to google Emmy thinking it’s another lung issue I’ve not heard of!

Wed, Sep 25 3:51pm · Mysterious shortness of breath in Lung Health

@ecassidymitchell, I love the spa and steam rooms too but have been advised by my doctors and other medical specialists to steer clear of them as they are hot spots for germs which can cause respiratory and lung issues. I have MAC though which may be different from your ailments.

Thu, Jul 4 2:34pm · M. Chimaera in MAC & Bronchiectasis

@sueinmn – thank you so much for sharing the video links and for your kind response. I’m learning so much more from these videos especially the preventative advice on NTM.
My CT scan has not shown any bronchiectasis yet but I’m still coughing with phlegm and I have repeat +ve sputum cultures for Chimaera.
I’m doing airways clearance and my consultant is not rushing into the antibiotics treatments.
It is so good to learn about this specific subject from many of you on this site. I live in London and although there are lots of info on bronchiectasis and COPDs etc. on the UK site I could not find many talking about specific mycobacterium infections.
Hoping you are all having good days. Best wishes and Many thanks.

Fri, Jun 14 5:36am · M. Chimaera in MAC & Bronchiectasis

Thanks Shari, that’s why this forum is so useful to gain knowledge and I’m so thankful to chat to you guys. It gives me more insight and ‘courage’ to deal with this bugbear, excuse the pun!
3 out of my four sputum samples showed +ve for the bug although my CT scan does not show evidence of this infection. I’m waiting to hear from the specialist end of this month and will find out what treatment if any will be suggested. It’s a slow growing bacterium and as my CT scan shows no lung damage yet I hope to get as much info as I can for the next steps. Thanks again for your info and support.

Fri, Jun 14 5:19am · M. Chimaera in MAC & Bronchiectasis

I did not have bronchoscopy. 3 out of my four sputum samples showed +ve for M. Chimaera although the consultant said there is no evidence of the bug or damage on my lungs in my CT scan.
Yes, I was on regular steroid inhalers since last Nov but have stopped now. Originally my gp thought it was to do with my asthma and suggested I should use the steroid inhaler regularly but I have read a study that these could trigger the non tuberculous mycobacterium.
I’m due to see a respiratory physio next week so I can learn about airway clearance.
Good to hear you are symptom free. Best of luck to you too. Thanks.

Thu, Jun 13 6:41pm · M. Chimaera in MAC & Bronchiectasis

Hi Ethan, thank you once again for your info. I won’t know about the meds yet until I have my next appointment with the specialist.
The links you sent from the fellow connect users are very useful personal insight. It will help me being aware and hopefully be more prepared.
Really appreciate your support. Thanks.