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Sue

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Sun, Sep 8 12:03pm · Vision Therapy helping anyone? in Eye Conditions

Has anyone received visual therapy for their eye issues? I have recently developed diplopia and also am (successfully) dealing with CRVO. After searching hard in my community of Jacksonville, FL, I finally ended up with a low vision specialist OD. How wonderful to know these professionals exist! Part of her practice is a vision therapist on staff. I've only had two appts – 16 planned – but am amazed at the work we are doing. In addition to the weekly hour long sessions, I do a lot of eye exercises at home. It is reprogramming the brain and eye to work together, or to work together differently. The therapist said that she has had a lot of success working with diplopia pts. VT is not accredited like PT and OT, so it is therefore not reimbursed; however, if I can restore some or more of my vision, it is well worth the out-of-pocket cost. I'll keep you posted on my progress, but let me know if you've had any experiences with vision therapy. Light to you! Sue

Thu, Aug 8 9:16am · Does anyone have a stitch in her eye? in Eye Conditions

After Tube Shunt surgery for glaucoma in December, 2018, the doc placed several sutures in my eye. He removed all but one shortly thereafter. The one that remains, is because to remove it could cause a serious drop in IO pressure and "deflate" the eyeball. Yes, I can see it at the right angle, but it is not visible otherwise. However, I can feel it. It is not so much painful as it is a sensation. If I'm tired I notice it more, and my vision seems a bit more blurry. However, I am almost always aware of it unless I am otherwise engaged thoroughly in something. I have diplopia as a result of the surgery and am still adjusting to that.

Has anyone had Tube Shunt surgery? What were your results? Any diplopia? And if you have a stitch in your eye, for any reason, can you feel it? All thoughts and comments welcome. Regards, Sue

Thu, Aug 8 8:57am · Retinal Vein Occlusion in Eye Conditions

I am so happy to hear that you are progressing well. Why is it that you do not need the shots? This is all new to me and I'm trying to understand while coping. Right now, the coping seems to be winning the fight for my time. Sigh. While my CRVO appears to be progressing in the right direction (see the doc for another shot in 2 weeks), my diplopia continues to wrestle with my life. I am pretty dogged and determined when it comes to matters of health, and I have continued to search and find helpful resources. However, I have had to DIG. None of my docs was able to suggest community resources. I am fortunate to live in JAX, FL where there are many resources, and I have worked with an excellent optometrist who specializes in low vision. She has referred me to another low vision specialist for some exercises to work with the muscles. Getting some occupational therapy to help with ADLs is a possibility. We have to keep working and take responsibility for our own health. Happy day to everyone! Sue

Tue, Jul 23 12:03pm · Retinal Vein Occlusion in Eye Conditions

I am very happy to report that after only one injection for CRVO, my far vision is 20/20! down from 20/100 at my appt last month. I did have another injection yesterday, Avastin, and will have a third in another month. We will then determine the need for future injections and frequency. I am blessed! I am a huge believer in affirmations, and found these two helpful: "I willingly forgive. I breathe life into my vision and see with compassion and understanding." "I see with love and tenderness." I hope this finds all my Connect friends well. Sue

Fri, Jul 19 5:09am · Sudden Onset Bloating in Digestive Health

There are occasions when I eat something, and within 20 – 30 minutes I become extremely bloated. It is very painful, and I look like I'm 6 months pregnant! This has occurred when I consume something that I've been eating regularly without incident. Most recently, eating a small amount of watermelon, or drinking Almond milk with Bone Broth Collagen mixed in. Once I become bloated, it lasts several hours or most of the day. I am not constipated. I've tried taking additional digestive enzymes, but the benefit is minimal. I've gotten to the point where I have eliminated those things from my diet because I am so fearful that I'll end up bloated again. I watch my diet closely because I've been hospitalized previously with bowel obstructions. But other than not eating the usual suspects for people with digestive problems, seeds, nuts, fruit, veggies, etc. I can pretty much eat what I want without getting bloated or other problems. Has anyone else experienced this, and if so, have you found anything that helps? Thanks! Sue

Wed, Jul 17 7:58am · Blood thinners for A-fib in Heart Rhythm Conditions

I have been on Eliquis for about 3 years without any problems – other than the expense. Last December I had tube shunt surgery to decrease the pressure in my eye due to glaucoma. After that, I developed diplopia, which is a challenge, but corrected with prism lenses in my glasses. About 2 months ago, I had sudden onset blurriness in the affected eye, for which I sought immediate treatment. I had a Central Retinal Vein Occulsion – bleeding. This is caused by glaucoma and/or HBP. My BP is well controlled, and my cardiologist feels it is the glaucoma. I am receiving injections into the eyeball and am expecting that my full vision will be stored. For a time, I was also place on low dose aspirin. This should be an ALERT to anyone on blood thinners. We think of low dose aspirin as being safe and helpful; however, it multiplies the risk of bleeding several-fold if you're on a blood thinner. By the way, @texas14, I have also had mitral valve repair and have no conflict with Eliquis. Of course, I would rather not be on it, but it is what it is. Does any of this help?

Tue, Jul 9 12:34pm · Obstructed bowel prevention - Miralax everyday in Digestive Health

I'm new to this group, but not to digestive issues, sigh. Twice, in 2012 and 2013, I was hospitalized with an obstructed bowel. It was unpleasant (NG tube), 12 on the pain scale, and frightening. Fortunately, with conservative hospital treatment, I avoided surgery and recovered. The reason for my obstructions was massive adhesions due to 7 abdominal surgeries. This was after a couple of years of all kinds of bloating, diarrhea, bowel incontinence, etc. After much testing and many trips to the ER, I went to the Cleveland Clinic. More tests – but nothing definitive. My GP was my best resource, and we finally decided that I should not eat any fruit, veggies, nuts, seeds, or fiber. I have an interesting diet! But it's okay. He also put me on Miralax every day to keep everything moving. This was 5 years ago, and I have been without any obstructions during that time. I follow my diet. The Miralax does keep things moving – boy, how I love to hear those peristalsis sounds! I have read several studies that indicate that this is not a healthy habit; however, it works for me, and I suspect the researchers have never suffered with an obstructed bowel! Has anyone else been using Miralax in this matter? I appreciate your comments. Regards, Sue

Mon, Jul 1 12:09pm · Diplopia (Double Vision) Help! in Eye Conditions

Hi Rhoda @rckj Thank you for your note. I hope things are going better for you. I'm dealing with a 1,2 punch right now with my eye. I was just beginning to get the hang of using prism corrective lenses for the diplopia, and then I developed Central Retinal Vein Occlusion in the affected eye. A week ago the Retina specialist gave me an injection of Avastin. He and I are expecting that the loss of vision I have experienced with the CRVO will be restored over time. My biggest issue is just adapting to the disorientation of having one eye that does not work. Walking and steps are a challenge for me. Fortunately, even though I am 73, I am in good shape, exercise, do balance exercises daily, and am working on muscle tone. So, I can pretty much handle maneuvering, but I don't feel confident. For example, I used to walk outside daily; however, now I feel more comfortable on the treadmill. (Well, to be fair, since I'm in Jacksonville, FL, I admit to preferring the air conditioning inside as opposed to 95 degrees outside!) I am a firm believer in a person's ability to improve her own condition. I know my issues will improve. It's just right now, this disorientation is something I've not experienced before. You are gracious to offer your experiences, and I look forward to any comments you have.

Thank you, Sue.