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7 hours ago · Anyone Tried Frequency Specific Microcurrent Therapy? in Neuropathy

Thanks you for posting cwallen9.
Please be sure to report your results with the InspirSpar macheine.

2 days ago · Back in the game after rehabilitation for debilitating pain in Adult Pain Medicine

Can't open the link. It says "restricted access"

4 days ago · Shingrix and peripheral neuropathy in Neuropathy

Good advice about anti-vaxxers!
FYI, facial shingles rarely effects the eyes. If the shingles rash is on the tip of the nose, then it might. See your ophthalmologist asap.

Wed, Nov 6 12:13pm · Help asking doctor if this is small fiber neuropathy or something else in Neuropathy

It certainly is hard not to obsess about this. Not only is it painful, it's also unpredictable. Plus, it's common to worry about what the future will bring.
There are a number of medications, primarily anti-depressants, that are commonly prescribed for PN. They not only address issues of anxiety and depression, but also seem to reduce the pain independently of their psychological effects. It may take some experimenting to find the right one. Your PCP can prescribe these, although seeing a psychiatrist or therapist certainly wouldn't be a bad idea.
Don't try to direct your own treatment too much. Let your PCP be the one to decide who to go to next.
Staying active and socially engaged is also helpful, as are techniques such as meditation. Many are discussed on this forum.
Be as positive as you can be. Worrying and questioning why this happened to you will never be helpful. With the passage of time, you will likely get better at dealing with it.

Mon, Nov 4 5:53pm · Help asking doctor if this is small fiber neuropathy or something else in Neuropathy

Hi @albeit
I did a very quick search for relationship between SFN and tinnitus. The only thing I found was tinnitus and SFN as a result of chemotherapy.
I also have tinnitus, but it preceded the SFN.
Tinnitus is usually caused by hearing loss. The brain manufactures sounds, because of the lack of input. That's why when people get hearing aids, the tinnitus is often reduced.
I'm pretty sure my hearing loss/tinnitus is caused by too much loud rock'n roll back in the day.
Also, by definition, PN is a disease of the peripheral nervous system. Problems with hearing, chattering teeth, and foggy thinking all would involve the central nervous system, so I think PN is an unlikely cause. However, as we all know, this is a strange disease, so I wouldn't bet on that.
Don't try to come up with your own diagnosis. Just tell the neurologist all your important symptoms, but try not to overwhelm him/her with every or short lived symptoms you can think of.
The frustration you feel is understandable. It would be helpful if you understood that the medical providers are also frustrated, and often can't come up with an answer to everything. As an example, my SFN is idiopathic, which means unknown cause. I know how it feels.
Jeff

Mon, Nov 4 12:54pm · Help asking doctor if this is small fiber neuropathy or something else in Neuropathy

Hi Albeit
Your case is somewhat complicated by the fact that you have symptoms that are not well localized in space and time.
You don't say how you got the diagnosis of SFN. There is a definitive test for this condition, a skin biopsy of the foot and another for the thigh for control purposes. You also should have had a nerve conduction study. SFN is not generally a diagnosis of exclusion, as you implied in the last sentence of your first paragraph.
I don't think this forum is the place for you to be told what tests to tell your doctor to order.
I share your frustration with the lack of time allotted for medical visits. The neurologist will not be able to explain all your symptoms with one diagnosis, or generally with one visit. His/her job is to get a good history and exam, then get the appropriate tests in the correct order (the results of one test often lead to another test).
One thing that might help is for you to list your symptoms, diagnoses, and previous test results in chronological order on a piece of paper that you can show to him/her. Then try to relax as much as possible, and let the system proceed.
Good luck, and keep us posted.

Fri, Nov 1 8:40pm · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Hi Jim
Your post was not difficult to understand. In fact, to me it was poetic..
The plain fact of the matter is that, for most patients, the path to finding something to help is always an "adventure" and sometimes
fruitless.
The medical profession has little to add to this problem, other than making a professional diagnosis, and offering standard medications, that work somewhat, and, sometimes. After that, you're essentially on your own. Forums such as this may offer effective alternative treatments and "tricks". At some point, I believe the docs will find a specific diagnosis, and treatment, perhaps a cure. No one else will.
I find that standing up to the symptoms, and challenging, and even laughing, at them, at times, works as well as anything. After all, it's your body..
Hang in, and do your best.
Best wishes to you!
Jeff

Fri, Oct 25 4:04pm · Aching legs from Small Fiber Neuropathy in Neuropathy

Hi John
Wow! Just what you need. Another hard to diagnose and treat disease. I've never even heard of it.
Thanks for the references. Good luck in the Spring.
Jeff