Badges (1)


Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (80)

Mon, Jan 6 1:45pm · Flares and advice in Neuropathy

@januaryjane, I have found that when I am not feeling well my neuropathy worsens and then gets better when I am over the cold, flu, etc. I am always happy when it reverts back! Helen

Sun, Jan 5 4:57pm · Apparatus for Neuropathy in Neuropathy

Hi Chris, no, I believe he has only written this and another book
previously. I had tried reading another book on neuroplasticity a few years
ago but gave up due to it being so technical. It is amazing what our brain
is capable of and the connection it has to our body. Now if we could only
put some of that knowledge to good use! Helen

Sun, Jan 5 2:18pm · Apparatus for Neuropathy in Neuropathy

@rwinney, chris, etc.etc. – anyone ever read Dr. Norman Doidge’s “The Brain’s Way of Healing”? It deals with the science of neuroplasticity and is written in laymen’s terms. I have not as yet, still waiting for a copy I ordered on Amazon. The reviews sound very interesting so I thought I would post an FYI. Helen

Dec 31, 2019 · VITAMIN B12 and Neuropathy in Neuropathy

Hi @rwinney, I also enjoy your sense of humor, don’t ever lose it.😁 I am curious though as to whether or not an early diagnosis of idiopathic neuropathy can lead to a reversal, have you any knowledge of successful cases? Mine was diagnosed early on but never was I prescribed any specific or special treatment. Thanks, Helen

Dec 31, 2019 · VITAMIN B12 and Neuropathy in Neuropathy

@pfbacon, I developed SFN after a bout with the flu, I thought perhaps taking the drug Tamiflu rather than the virus caused mine. (the Tamiflu was also ineffective) I had read somewhere online about this possibility but that reference has since disappeared. I don’t think there is any way of knowing definitively the cause. At any rate my neuro didn’t seem to think it would make any difference in my treatment, I hope she was right.

Dec 24, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Great news @burningfeet! I never had the biopsy done, my neuro didn’t think it would change her treatment which was gabapentin for the pain. She is willing to do the test if I request but I also do not see how the results will effect any change in treatment for me. FYI, Dr. Levine does have a financial interest in one of the few labs available for testing the biopsies; from everything I’ve read, my knowing the cause will not change the treatment of idiopathic neuropathy unless you are found not to have neuropathy at all such as in your case. Hope your feet continue to improve. Helen

Dec 22, 2019 · Its just been two weeks, could this be Small fiber neuropathy? in Neuropathy

Hi Chris, thank-you for your lovely warm wishes , I also wish you and your loved ones a wonderful holiday season. To answer your question, no I do not take any anti-depressant, I do have 2 – cymbalta and nortriptylene which were prescribed but I have never taken, I wanted to try the supplements, exercise etc. first to see if they could be helpful. I had taken Zoloft many yrs. ago which helped with some anxiety and depression I was going through but also resulted in some side effects which made me discontinue. I was experiencing anxiety and mild depression with the SFN which I believed was caused by the gabapentin. (?) I added a B complex to my regimen and those symptoms have gone away. I only purchased the 3/1 P&B balm and the really strong (!) 1/300 tincture which I hope to never have to use. I am still only relying on the gabapentin at night and purchased the CBD’s while in Ca. for possible future use. Hope your tapering off the Nortriptylene continues to go well for you. Helen

Dec 22, 2019 · Its just been two weeks, could this be Small fiber neuropathy? in Neuropathy

Sounds like t-1’s are the same as Vicodin and hydrocodone here. Tramadol has the same effect on me. I had a dr. refuse to give me a particular sleeping pill years ago (I had requested a small dose/amount prescription to try during a bout of insomnia) and he insisted on Ambien which I did not care to try due to many friends’ horror stories. I changed dr.s.