I stopped taking B12 which seemed to make my SFN worse and then stopped the low dose B Complex, my neuro said if my levels were within range , no need. I do think the RAla, magnesium, biotin and omega 3’s have helped.
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Chris, does your cannabis tincture make you feel high and do those cannabis products alleviate all or most of your pain? I’m trying to decide what exactly to purchase during my California visit. Thanks in advance. Helen
Cindy, my experience with SFN sounds exactly the same. I wondered if my taking Tamilu had any connection. I have the burning, tingling in my hands and feet along with the muscle twitching in my legs and night time feet/leg cramps. It came on suddenly 18 months ago. I initially experienced some other slight transient symptoms and and still do but they cine and go. I take 300mg. gabapentin at bedtime and various supplements during the day which I think help. I exercise and drink no alcohol, but I have no weakness, and feel that my neuropathy has improved over time. I have had a few flare ups but possibly with the virus- caused neuropathy the affected nerves improve with time? My neuro classified me as ideopathic but after ruling out other causes believe mine was caused by a virus. I hope you also improve over time.
are you currently taking gabapentin? I developed hives on different parts of my body initially which took a few months to taper off and eventually go away. They were itchy but did not hurt. A friend also broke out in hives when he was prescribed gaba for back pain.
Mon, Oct 14 10:03am · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy
I have not experienced a connection that I am aware of nor has my neuro mentioned any connection. I do know that stress can have a negative influence on many conditions so maybe it depends on the individual.
@iceblue, I agree with Chris, I was originally prescribed gabapentin 3xday but decided to try it 1xday at night and it does put me to sleep and is good for about 18 hrs. but I can go 24 hrs. without it. I do take it 2 hrs. before bedtime, it takes that amount of time to kick in. You can always increase the dosage if necessary, Helen