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Posts (2)

May 24, 2019 · Eagle Syndrome in Ear, Nose & Throat (ENT)

I taste blood often. When I first started looking into my symptoms the nasopharyngeal carcinoma made sense. I have been fighting doctors for a year as my symptoms are progressively getting worse to the point of crippling. I can no longer work and I can not find a surgeon willing to do the surgery. They don’t offer any type of treatments or even pain medication. There are days I just lay and stare at the ceiling with only my thoughts to drive me crazy, because the pain is so bad I can’t move and I can’t sleep.

May 24, 2019 · Eagle Syndrome in Ear, Nose & Throat (ENT)

Who did the surgery? I have been tossed around from doctor to doctor just to be told they don’t treat eagle syndrome. The one doctor in my state that does treat it doesn’t accept my insurance. I am so frustrated. I am virtually disabled from this. I spend many days bedridden with the pain. It’s been coming on slowly for about a year and doctor after doctor telling me it was somatic and I was nuts. Finally one ent felt inside my throat and said yup that’s your styloid process! Relief! That I wasn’t crazy but not the battle of insurance and finding a doctor who is willing to do the surgery. I hear it’s risky and not many doctors can even do it. I’m an feeling hopeless, helpless and scared. Any info would be greatly appreciated.