About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (3)

Tue, Jun 25 3:01pm · Car-T therapy for B cell lymphoma in CAR-T Cell Therapy

The overall experience was good. There were some very tough days. However, I tried to remain active every day I was in there. I would walk laps no matter how bad I felt. The day my ANC was zero is etched into my memory forever. I did an on-line course while I was in the hospital for a month. It helped to keep me distracted. I was very blessed through the process.

Fri, Jun 21 11:01am · Car-T therapy for B cell lymphoma in CAR-T Cell Therapy

I hadn't thought about a second opinion from Mayo until now. I did get a second opinion from the UCHealth University of Colorado Hospital. They didn't have the Allogene Car-T trial. They wanted me to go through radiation and then to a bone marrow transplant with a donor.

Thu, Jun 20 5:20pm · Car-T therapy for B cell lymphoma in CAR-T Cell Therapy

Hi, my name is Kevin. I have Follicular B­-cell non­Hodgkin's lymphoma. I am currently receiving TTI-622 by Trillium Therapeutics, an experimental drug clinical trial. They are trying to extend me into the Allogene Car T Cell trial on August 11, 2019. I am going through the Colorado Blood Cancer Institute in Denver. I have had several treatments since 2015, including R-CHOP and RICE chemotherapy and an autologous stem cell transplant (at CBCI). I relapsed from my stem cell transplant within 10 months. Everything seems so surreal to me. I am scared and feel somewhat lonely. It helps reading about other people's journey on this site. This is the first time I have accessed information in this manner. Kevin