Hello everyone. My name is Barry and I’m 67. I was diagnosed approx 4 years ago. Same onset as everyone else; an incredible aging overnight. This vibrant athlete went to old man in milliseconds. Anyway just like everyone else 20 mg of the the prednisone and I was my old self again. Miracle!
Then the bad news. I am hooked. I got down to 2.5 mg and crashed. I always crash below 3. Now back up to 5 today. I too was told to go on methotrexate and refused. Anyone get good results ? Cured ? Or is the pill worse than the disease. Any supplements
Help ? I don’t mean placebo but really help? It’s very discouraging because you think you’re getting close to the end. Sed rate is good but doesn’t mean anything. Still have PMR with good sed rate. I haven’t heard from one person on this site that there is hope. Only failure. Can anyone give us any hope to this terrible disease. I now have my fingers deforming and swelling. They hurt too. Some days it’s my legs, some days my neck. Always my fingers. Somebody tell me I’m not going down the drain. Thanks