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Tue, Aug 20 12:45pm · Polymyalgia rheumatica in Autoimmune Diseases

Hi, Today our disease got some publicity in the 08/20/19 New York Times, science section, by Jane Brody, writer.
It’s good publicity but contains nothing you have not covered.
The 43 comments were interesting and one md mentioned several times we all should have been tested for a tick disease before going on prednisone? I never heard of this. If you give me an e-mail address, I will forward to you.
I was happy for spreading the word and maybe attracting some research $$ for PMR.

Sun, May 26 12:57pm · PMR Anyone? in Autoimmune Diseases

Thank you for reply. I started at 20 ml predinone and slowly
Tapered for a year to 3 mg.
I did not have a formal schedule
And maybe that was part of my headache problem. I remember going down very slowly. My
A1-C and Sed are now normal and I hav never had the terrible pain of many in this group. I just wonder if the two drugs
Mentioned above are overkill for present condition.? They both have potential bad side affects.
Leflunomide OR Methotrexate are the strong drugs being considered by my arthritis md to
Gradually taper from the prednisone currently at 6 mg.

Fri, May 17 8:06pm · PMR Anyone? in Autoimmune Diseases

I am new to this group ! I have been looking for
other PMR suffers for a long time. On Prednisone for one and half years. Last year I managed to taper to 3mg but suddenly came down with a terrible frontal headache for several weeks. Luckily I had the required eye exam and was ok. Went back to 20mg but quickly tapered to 7mg where I am stuck. My labs are now normal and have been for some time. When I try to taper more, I just feel so tired, no pain. My arthritis md wanted me to go on Leflunomide from the beginning of treatment and I finally tried it recently just for a few days and had horrible diarrhea. She wants me to try again at 1/2 dose but the above problem ? Has anyone here had experience with this drug? Have never tried Methotrexate but do not drink.
Any help appreciated!!