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May 11, 2019 · Adjusting to life with temporal arteritis in Polymyalgia Rheumatica (PMR)

I was just diagnosed with temporal arteritis yesterday after years of everyday headaches. This past week has been the absolute worst it has ever been as the vessels in my neck and head got so inflamed and my blood pressure was at stroke level. Now on prednisone but can't get into neurologist for follow up till next week. Looking for advice in the meantime. Headaches not bad but still really hurts my neck and head to lay down on the pillow at night. Any suggestions as to pillow types? Neck still gets very stiff and hurts too. Also anything suggested for how not to reaggravate those vessels? Sitting or lying positions, etc? Just starting to learn to deal with this so any everyday living suggestions would really be appreciated.