Member has chosen to not make this information public.

Groups (1)


Member not yet following any Pages.

Posts (4)

Mon, May 13 3:41pm · Optic Nerve Meningioma patients in Brain Tumor

My sister works for my ophthalmologist.. I ask all the time if they could just pop my eye out and be done with it..I also have tried cover my eye, but sometimes that is worse. I have also rodeo'd my entire life, barrel racing, I am struggling with that now also as I have zero depth perception. have any of you done the radiation treatments? That is what they are thinking of next. My next appt is the end of June, so I guess we will see. Thank you for sharing with me. It does help knowing that others understand what I am going through.

Sat, May 11 8:39am · Optic Nerve Meningioma patients in Brain Tumor

Im so glad I found this site.. I haven't had anyone around here that has had the problems that I do. They just dont understand. After trying to work this last week, Im a nail technician, I almost decided that there isn't anyway to keep doing that. After a day of trying to see where to place the brush, my headaches are horrible. So disappointed that the removal of this didn't help with my vision and somedays I think it is getting worse. I to am trying to stay positive and I know its only been a short time. But, this is really starting to work on me. Thanks for listening/reading.

Thu, May 9 2:15pm · Optic Nerve Meningioma patients in Brain Tumor

This was my first operation. My surgeon said he wouldn't go back in again. My surgery was done in Murray UT. Now we are planning on radiation that will last 6 weeks, 5 days a week. I am having MRI's every 3 months.This has been a crazy journey. Im sad that my vision didn't change with this surgery and am doing all I can to stay positive..

Wed, May 8 10:35am · Optic Nerve Meningioma patients in Brain Tumor

I recently, Feb 12, had surgery to remove meningioma from optic nerve on my left side. I had lost most of my vision in that eye. No peripheral vision or depth perception. I was hoping after surgery to get some of that back. I do nails for a living and still can not see like I would like to. If anyone has had something similar to this and got their vision back. I would love to hear about it.