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Posts (6)

Sun, Oct 13 7:25pm · Chronic Sinusitis in Ear, Nose & Throat (ENT)

Gosh Suzanne. It sounds like you really have seen many different specialists to try and figure this all out. I can’t imagine your frustration and fatigue you probably have.
The reason why I asked so many questions is because, I had what was supposed to be a minor sinus surgery for ear issues. I never had sinus infections or anatomical breathing issues prior to surgery. Since my surgery I have had many issues.
I have had to get many opinions and educate myself on what exactly causes infections/inflammation and what exactly surgery will and will not do for the issues. Do you mind if I ask the name of your ENT or if you don’t feel comfortable naming, at least the location? It sounds like your body had a struggle adjusting to the new external irritants in a new country. And with all the work to fight off infection and surgeries it has now thrown other systems off in your body.
There is always a place for Western Medicine, but have you tried working with functional medicine/natural path doctors to try and get your body back to as close to homeostasis as possible. Some of the more natural regimens require months of being diligent and patient, but it is worth a try. Since you were healthy before your body is fighting to get back to that place. If you have a resistant staph infection, I’m curious how you learned it was staph and how your labs could come back normal?
Your body has now experienced a lot of internal trauma and stress, which will need to be addressed to help in the healing process.

Sun, Oct 13 2:57am · Chronic Sinusitis in Ear, Nose & Throat (ENT)

Hi Suzanne. So sorry to hear what you are going through. To not have answers and to feel like you, or your doctor have tried everything can be extremely frustrating.
Often times surgeons will only want to operate as that is what they are trained to do. Not understanding or mistaking the root cause of the issue. I know you stated your ENT is one of the best in the country. But perhaps it’s time to get a second or third opinion if you haven't done so already. The nasal mucosa has healthy bacteria in it that helps to fight off everyday dust, allergens and viruses. I am not sure what type of sinus surgery you had, you said extensive, so I would be more curious if the surgeries are contributing to your worsening of symptoms. Many people will suffer afterwards from their natural lining/mucosa being disrupted by surgery causing bad bacteria to colonize even more. Hopefully you have had time to restore your gut flora
from all of the antibiotics you have been on and are nourishing your system with foods that will assist in overall immune health.
The whole body is connected, so surgery on the sinuses can affect the whole body. The same lining that lines the nasal mucosa also lines the esophagus all the way down to our gut.
ENTs or surgeons will only talk to you about what’s going on from the neck up. Have you thought about seeing an infectious disease specialists since this did start while in another country. With the other things you mentioned that set in a year after surgery, it sounds like you need a whole body approach on this and to not just be given prescriptions from an ENT.
I would be curious to know how long you lived in Asia before developing symptoms and being healthy prior to. Our bodies can have a hard time adjusting internally/externally to a shift in environment like a move. Temperature, climate, even different water sources and foods can all affect the internal microbiome. When that gets disrupted, that can cause stress on the body which can cause things like infections.
The sinuses also respond to high stress with inflammation, which is not helpful when going through something stressful with your health.
Try to get to the root cause with the right help and I’m positive things will get better for you.

Fri, Aug 30 9:35pm · Mystery Illness: Mastoiditis or something else? in Ear, Nose & Throat (ENT)

Hi. Has she seen someone who has assessed her musculoskeletal system in her neck. There are certain muscles, that when tighten/spasm will cause pain that radiates into the ear scalp head area. One muscle in particular that can cause pain behind the ear, and attaches in the mastoid area. These headaches that start from the upper cervical area can cause all kinds of odd dizziness/pressure sensations, and often times you can not tell it is coming from the neck. ENTs are supposed to be educated on the Jaw area and how all of these muscles can mimic ear/sinus pain. But unfortunately most are not.
Just a thought.

Fri, Aug 30 9:25pm · ENT Issues: I don’t know what to do. in Ear, Nose & Throat (ENT)

Hi. Would you mind telling me what your diagnosis first was from the ENTs and then what Mayo Clinic found? I was wrongly diagnosed by an ENTs and have had horrible symptoms ongoing for 1.5 years after. I was going to make an appt out to Mayo Clinic but wasn’t sure.

Thu, Aug 8 9:09pm · Facial Pain - Empty Nose Syndrome in Ear, Nose & Throat (ENT)

Hi. Have you seen a doctor who specifically assesses empty nose syndrome? Have you been seen by your original surgeon? Have you had these symptoms progressively over the past from your surgery or sudden onset? I have had similar symptoms that I am trying to currently get addressed 1.5 years post surgery.

Tue, May 7 9:54pm · Facial Pain - Empty Nose Syndrome in Ear, Nose & Throat (ENT)

Hello,
I am new to this forum.
Could you tell me more about how you were formally diagnosed with ENS? Were you seen in person by Dr. Das? Or was it just a phone consult?
I had FESS surgery a year and half ago and have been on a journey for the last year to understand what has been going on.
I have been told, I do have scarring, but that shouldn’t be causing my pain. I have seen 4 different ENTs. I have been told by all, that they see inflammation and blockages and their only solution is a revision surgery. I tried the saline/budesonide rinse, but can not make it that long as it causes more pain and dryness.
Could you tell me more about your journey with this so I could get a better understanding of what I am experiencing is ENS, or if I should go another route for healing.

Thank you