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Posts (16)

Sun, Sep 15 4:21pm · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Hi McLeslie – I am sorry about your husband's recent diagnosis and that he is not feeling well. Yes, the symptoms mimic so may other things and it can come as quite a shock when you finally get the diagnosis. And that diagnosis is terrifying and difficult. Things do tend to settle down to a new normal however and I am praying for peace and healing for you both. Many survivors here and we are here for you.

Fri, Sep 13 1:42pm · Lung Cancer: Also have other conditions (heart, diabetes and TIAs) in Lung Cancer

My illness followed this course. If you have only one lesion at 11 mm that is pretty hopeful if you follow up soon. Even if the big C only one lesion of that size can be pretty hopeful. Mine was over six years ago. I lost a lobe of one lung and had no other treatment. Here I am becoming more ancient but still kicking. Also, it could possibly not even be cancer, All kinds of inflammatory things light up on PET scans. I have a couple of scares since but the lesions turned out to be something else. Don't let fear freeze you. Share your feelings with your providers – we all have them. They will generally respond with kindness and support

Wed, Sep 4 10:12am · Palliative Care: What is it? How do I get it? in Cancer: Managing Symptoms

My current most important cancer is hopefully a single lesion that may be a recurrence (I find out next week) and the option being considered may be adequate. There may indeed be options my docs think I will turn down because I have done so before with quality of life at my age being the most important consideration. I am being helped by the counseling and most by participation in a support group at the Cancer Support Community. More help is always appreciated. I suspect it will need to be spiritual. I have thought of joining a zen community but am pretty sure I lack the necessary discipline. I still try to participate as I can in the rescue and rehab on protected wildlife and in being in nature. And enjoy when I can socializing with amateur cosmologists who see in nature no purpose but great beauty.

Tue, Sep 3 1:49pm · Palliative Care: What is it? How do I get it? in Cancer: Managing Symptoms

It has helped a bit because the psychologist listened and even pointed out that in many ways she agreed with me, helped me accept that I am more a fighter than a mystic (I was trying to be more a mystic HA). She also pointed out the current realities of the health care system which was accurate but not necessarily helpful. We did some exercises as part of a relatively new practice called meaning-centered therapy. We discussed my results the essence of which were I am afraid of death. I thought this was useless but my sweet husband pointed out that was just the test result – now we work on applying it. I am being helped enough to remain committed. My psychologist is at Mayo and I am finding her more than competent and would recommend her. Thanks

Tue, Sep 3 12:26pm · IBS Relief at Last in Digestive Health

Is your dietician at the Mayo Clinic?

Tue, Sep 3 12:21pm · Palliative Care: What is it? How do I get it? in Cancer: Managing Symptoms

I have released by my PAalliative team because I do not need pain medications at this time and spiritual support consistent with non non-theist belief system is not available. I am fearful of my demise and do see the teams clinical psychologist periodically to deal with that and that has been helpful

Sun, Sep 1 9:26am · After Keytruda, what's next? in Lung Cancer

With all due respect Mary I find your concern for your own discouragement and the possible discouragement of the "others" to who you infer to be insensitive and possibly hurtful to Liz. Each sufferer has the human and legal right to consider, express, and decide these things for themselves based on their own values and life goals. I do not know your professional credentials in counseling but I would have far preferred you encouraged Liz to seek that second opinion and more importantly the services of a competent counselor.