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3 days ago · Neuropathy & Exercise in Neuropathy

If you can walk, walk on!
I have been to many doctors
Therapists you name it I have tried
it. The one constant is “walk”
I admire your courage.


Fri, Nov 1 11:12am · Aching legs from Small Fiber Neuropathy in Neuropathy

I feel your pain way more than I want to! Crawl into bed oh feel the burn and finally go to sleep despite pain,wake up way too many times. Keep moving stretching any trick to help,wish i had treats! When morning comes there it is lurking building momentum to scream all day
but we do keep moving don't we?

Sun, Oct 27 9:52pm · Electric shock on top of my right foot middle of the night! in Neuropathy

Oh my dear,last night I bit my pillow it was so jolting with that electric shock I was afraid to take a deep breath! It was the side of my feet then the ankle.Can’t call them cramps can you!
Hang in there this too shall pass,what is next is a mystery.
You have strength to be proud of

Tue, Oct 22 11:11pm · Living with Neuropathy - Welcome to the group in Neuropathy

Still feeling the burn!
Dr suggest lidocaine injections but I don’t think they work for very long so not sure about the benefits.
Just once wouldn’t it be great to sleep and not wake up burning?! But then I would get greedy and want feel that freedom again!!
Thanks for the support I really really value this group

Sat, Oct 19 8:45pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

Your reply is so very encouraging

Mon, Oct 14 1:48pm · Living with Neuropathy - Welcome to the group in Neuropathy

I am not on any meds at the moment,except blood pressure. Drs offer no help Ichanged neuro dr but appt is a month away.
I am tired and keep looking for some hope

Sat, Oct 12 2:52pm · Small Fiber Neuropathy? in Neuropathy

Oh dear comrade in the fight to seek freedom from the pain!
My prayers are going you

Thu, Oct 10 11:08pm · Living with Neuropathy - Welcome to the group in Neuropathy

I have been taking Balofen 10mg x3 in 24hrs,but as of late my Achilles Tendons have been getting spasms and surprising me with a tightness in the middle of night,along with a surprise spasm in my feet,toes and legs.
The dr has switched me to Tizanadine 10mg 3x day. I do stretch my feet and ankles despite the aggravation it causes in the burning. Then again the burning never stops anyway.
Everyone who posts on this site encourages me with their willingness to keep looking for help and I may not have much to offer I sure do appreciate knowing you are out there!
I was approached in pain management to try capsian, they sedate you and wrap your feet in it,I used the cream and could not get it off fast enough! The burning was deep and awful,I don't need anything to increase that. I think it is barbaric and comes with too high of a cost to exacerbate pain.
One day we will feel no pain and run and not grow weary,we will walk and be faint.