Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (16)

Sat, Jan 4 6:02am · Bradycardia in Heart Rhythm Conditions

Just my opinion, but your very low resting heart rate is not a simple in office “ off the cuff” diagnosis of POTS. I am not familiar w that condition but read it’s symptoms on Mayo website. You need a new doctor and definitely look for your own electrophysiologist. I rely on multiple reviews and (where they did medical training.. it matters), when researching a doctor. Do your own, don’t rely on your current Dr. if you could go to Mayo Clinic, they have the BEST.

Wed, Jan 1 1:03pm · Bradycardia in Heart Rhythm Conditions

I finally agreed to pacemaker after being told by my Mayo Clinic E.P. that I have sinus node dysfunction …Brady/tachy/ pauses. It can only be diagnosed with an electrophysiology study for aFib ablation. I gave in after 4 yrs of heart pauses that sometimes I felt like blacking out. Ironically, it was at the Stop aFib Conference Aug.2018, I borrowed daughter’s Apple Watch, I could see how really low my heart rate was going, and speeding up randomly. I felt crappy. No more. The pacemaker immediately got rid of pauses while in recovery. Doc was so pleased..it was like he was looking at his science experiment, and got an “A” ! Ppl of all ages need pacemakers, so don’t hesitate. It will give you your active life back. I had same experience of 2 wk monitor in Texas and E.P. Doc said see you in a YEAR🤨. I headed back to Mayo Clinic the very next month…best decision for me.

Dec 21, 2019 · KardiaMobile in Heart Rhythm Conditions

Mayo Clinic did research study and proved to FDA that we can indeed use Kardia Mobile to detect aFib.. I have AliveCor and record and send to my doctor. It’s nice to have everywhere you are and no emergency room visits to establish aFib. Doctor can see if it’s aFib or just crazy PAC’s or PVC’s. Comforting.. so get one.

Dec 21, 2019 · Pacemaker surgery & precautions in Heart Rhythm Conditions

I also reluctantly got PM for A/V node dis function / aFib. Heart pauses disappeared immediately and I feel much better. I had them adjust settings to allow heart rate to go a little faster for treadmill workout. So if you like to exercise, mention settings. No trouble w iPhone or iPad.. just remind myself to not carry them within 6-8” of PM. Going through airport security , I go through body scanner.. no problem. My PM doesn’t stop my aFib episodes.. I take Sotalol/ Diltiazem since Sept. and haven’t had any episodes. Oh, I do feel PM, it makes that area achy sometimes. Good luck Monday!

Nov 11, 2019 · Heart Problems, Cardiac Symptoms, But Test Results Normal in Heart Rhythm Conditions

I have been on a beta blocker 43 yrs. Beta blockers are not dangerous… not sure where you got that info. Don’t listen to anyone but your doctor. Beta blockers have been safely taken by people with arrhythmias for decades. It is a widely prescribed drug for stage fright..actors take it. There are numerous medical conditions that beta blockers are used for, not just cardiac issues. Try it.. you might feel better and won’t have tachycardias that are frightening for all of us. Hope this info helps you.

Sep 22, 2019 · Pacemaker recipients. in Heart Rhythm Conditions

I have dual chamber PM for bradycardia as result of my EP wanting to put me on Sotalol. That part works fine.. no exercise restriction( treadmill). But as for PM intervening an aFib episode, so far it hasn’t. It’s a low % success rate & I am one.Disappointed but Sotalol seems to help self convert me.. so that’s good. Sotalol is safer than Flecainide for structural heart disease ( valve issues). Hope this helps answer your concerns.

Sep 1, 2019 · Tykosyn use in Heart Rhythm Conditions

I checked w drug plan, and Dofetilide was expensive…we calculated $5000. Over 5 yrs. 3 times cost of Sotalol. Does that sound like your cost? soph@soph ? Just curious. That was my copay…so I would have been in donut hole quickly and take 4-5 other drugs.

Sep 1, 2019 · Tykosyn use in Heart Rhythm Conditions

Tykosyn was recommended but after reading electrophysiologists comments that it stops working after a few yrs, I opted to try Sotalol. Cost of Tykosyn is very prohibitive also. Flecainide stopped working 2nd yr in AFTER ablation. With Sotalol, I have 4-6 hr aFib episodes every 4 months so far…1 yr with Medtronic pacemaker. So it works better for me. PM got rid of my pauses & slow HR. Hope this helps. Sotalol least cost of the 3 drugs I mentioned.