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Posts (18)

2 days ago · Heart Disease: Let’s Talk About the Emotional Side in Heart & Blood Health

Agree. The 10- yr deal w Google opens a Pandora’s box. On the other hand, if as promised Google develops AI for Mayo’s it could be a good thing for patients. My issue is with Epic being used by Mayo Clinic. Our data is out there for anyone w Epic to see and who knows who else can access. And CEO of Epic.. well just do your own research on her.
Sorry to also go off topic but this affects all of us that are Mayo Clinic patients. This issue will not stop me from going to the only medical facility I consider #1 hands down.

Mon, May 4 2:03pm · Weaning off Metoprolol in Heart Rhythm Conditions

Dr. Deshmukh is my EP also. I hesitate to recommend him..don’t want him to get too busy.😊. He has great Dr/ patient rapport. He put in pacemaker and will perform a 2nd ablation ( he didn’t do 1st), if my aFib becomes unmanageable w meds. I do not have interventional Cardiologist, since Dr. Callahan passed away ( Mayo Dr.). I figure with checkups and echo’s, if I needed to see one, Dr. Deshmukh would refer me. I trust only Mayo Clinic with my heart ❤️. And I live in Texas, but worth the trip.

Sat, Mar 28 11:08am · Pain around pacemaker site in Heart Rhythm Conditions

I had Medtronic implanted Sept.2018 at MayoClinic. I also have had sharp pains where you do..even into my shoulder. I still have achy feeling right over PM but sharper pains have diminished in past couple months. I always feel it.. it never lets me forget its there. My local EP even said she can’t imagine having a PM in her chest..wow…she realized immediately what she had just said to me!
As to being notified about MEDTRONIC warning…( mine is on list) my Mayo EP nor local EP notified me. I read it on a tweet in May from an EP at the HRS conference. My wireless reading shows an appropriate loss of battery so far. I am really nervous about a planned European trip later this year and won’t be taking my bedside wireless monitor. I have been reassured by Medtronic rep that when I get back home, it will download automatically precious days away from it. Easy for them to say !

Sat, Jan 4 6:02am · Bradycardia in Heart Rhythm Conditions

Just my opinion, but your very low resting heart rate is not a simple in office “ off the cuff” diagnosis of POTS. I am not familiar w that condition but read it’s symptoms on Mayo website. You need a new doctor and definitely look for your own electrophysiologist. I rely on multiple reviews and (where they did medical training.. it matters), when researching a doctor. Do your own, don’t rely on your current Dr. if you could go to Mayo Clinic, they have the BEST.

Wed, Jan 1 1:03pm · Bradycardia in Heart Rhythm Conditions

I finally agreed to pacemaker after being told by my Mayo Clinic E.P. that I have sinus node dysfunction …Brady/tachy/ pauses. It can only be diagnosed with an electrophysiology study for aFib ablation. I gave in after 4 yrs of heart pauses that sometimes I felt like blacking out. Ironically, it was at the Stop aFib Conference Aug.2018, I borrowed daughter’s Apple Watch, I could see how really low my heart rate was going, and speeding up randomly. I felt crappy. No more. The pacemaker immediately got rid of pauses while in recovery. Doc was so pleased..it was like he was looking at his science experiment, and got an “A” ! Ppl of all ages need pacemakers, so don’t hesitate. It will give you your active life back. I had same experience of 2 wk monitor in Texas and E.P. Doc said see you in a YEAR🤨. I headed back to Mayo Clinic the very next month…best decision for me.

Dec 21, 2019 · Medical devices to monitor heart rhythm (i.e., Alivecor, KardiaMobile) in Heart Rhythm Conditions

Mayo Clinic did research study and proved to FDA that we can indeed use Kardia Mobile to detect aFib.. I have AliveCor and record and send to my doctor. It’s nice to have everywhere you are and no emergency room visits to establish aFib. Doctor can see if it’s aFib or just crazy PAC’s or PVC’s. Comforting.. so get one.

Dec 21, 2019 · Pacemaker surgery & precautions in Heart Rhythm Conditions

I also reluctantly got PM for A/V node dis function / aFib. Heart pauses disappeared immediately and I feel much better. I had them adjust settings to allow heart rate to go a little faster for treadmill workout. So if you like to exercise, mention settings. No trouble w iPhone or iPad.. just remind myself to not carry them within 6-8” of PM. Going through airport security , I go through body scanner.. no problem. My PM doesn’t stop my aFib episodes.. I take Sotalol/ Diltiazem since Sept. and haven’t had any episodes. Oh, I do feel PM, it makes that area achy sometimes. Good luck Monday!

Nov 11, 2019 · Heart Problems, Cardiac Symptoms, But Test Results Normal in Heart Rhythm Conditions

I have been on a beta blocker 43 yrs. Beta blockers are not dangerous… not sure where you got that info. Don’t listen to anyone but your doctor. Beta blockers have been safely taken by people with arrhythmias for decades. It is a widely prescribed drug for stage fright..actors take it. There are numerous medical conditions that beta blockers are used for, not just cardiac issues. Try it.. you might feel better and won’t have tachycardias that are frightening for all of us. Hope this info helps you.