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Health Interests
Autoimmune diseases, Bone, joint, and muscle disorders, Chronic pain, Neurology (brain and nervous system), Palliative and end-of-life care, Other

Posts (12)

Sep 13, 2019 · Housing while in pain program. in Chronic Pain

Hi I was wondering I just saw that this a pain program at the Mayo Clinic I didn't know if it's different from a pain clinic but how do I get involved in this idea what the billeting pain from CRPS and I'm really struggling if somebody could please let me know how I would try to get involved in the Mayo Clinic pain program that would be great thank you so much Melissa

May 25, 2019 · Chronic ice pain, neck ,back and RSD in Chronic Pain

Hi I am sorry to hear about what you are going through and all the pain I too have RSD and what I've been told is June on ice with RSD it can actually make it worse I was told by a couple of doctors so I do heat I don't know if that's going to be any help to you but I saw that you wrote about icing and RSD so I just wanted to try and help you out with that I hope you begin to heal

Apr 22, 2019 · RSD/CRPS in Brain & Nervous System

Hi my name is Melissa and I have had cprs for about 10 or 11 years and I just got diagnosed to Anne after years ago I have it in my right upper arm it goes through up to my neck into my rib cage and into my back and I'm so scared that it's spreading onto my right side because I'm trying to get a lot of nerve pain but when I was reading your texts about it get chest pains ate my chest pain started about a year ago but over the last 2-3 months I've been feeling my chest pains extremely bad and like you said you're worried it could be a heart attack I feel the same way at some point the pains in my chest are extremely bad I'm having issues with my insurance company right now so I'm trying to find a cardiologist to help but due to my insurance right now it's hard to I'm just really scared there's something wrong with my heart do you know how CRPS affects your heart and what it can do if you do could you please explain it to me I would really appreciate it as I am only 36 years old and I have a 17 year old son so I'm extremely scared about my heart issues thank you so much

Apr 20, 2019 · RSD/CRPS in Brain & Nervous System

I'm sorry I'm new to the site and how would I private message somebody if you could please let me know that would be great thank you

Apr 19, 2019 · RSD/CRPS in Brain & Nervous System

Hi my name is Melissa and I have CRPS I got diagnosed about two-and-a-half 3 years ago but they believe I've had it since 2007 I live in Mass and I would love to get in touch with you and talk to you I don't know anyone in mass that has this disease and it'd be really nice to talk to somebody that gets the pain and understand stuff private message me if you want I would love to talk to you and I'm so sorry you're dealing with this horrible disease to

Apr 19, 2019 · RSD/CRPS in Brain & Nervous System

Hi my name is melissa I live in ma I saw u go to bi love that hospital I was wondering if there is any way we could have a private message I would love to talk I don't no anyone in ma that has this horrible disease

Apr 13, 2019 · CRPS in Chronic Pain

Last summer when I had surgery on my elbow because it kept dislocating by itself so they had to fix it and yes it was on my affected limb I had to do pt after surgery and there was on a couple of PT's from Mass general that know about RSD so I don't know where you're from but Mass General in Boston they might be able to help you and also my surgeon was out of Mass General and he got a service of nurses and PT's to come to my house if you live in Mass I can always get that information for you and see if you qualify for them to come to your house because one of them specialized would CRPS if I can help you in any way please let me know I understand what it's like

Apr 13, 2019 · CRPS in Chronic Pain

I smoked it at night because I can't sleep due to the pain even though I'm on a lot of sleeping medications but it makes me completely Stuck on Stupid and exhausted and I'm already exhausted during the day so I can't really smoke it so I'm trying to figure out other stuff too I tried CBD oil CBD cream that you put on your body the mouth drops smoking it and bathe but when my nausea is so bad and my nausea meds aren't working I'll take a hit during the day just to calm it down but like I said it makes me so tired I try and do what I can around the house but I can't really do much so I end up sitting on the couch or in my bed all day because the pain is just so bad especially if I get up and move around more